My name is Thomas Horal, I'm 31 years old and have been living with cystic fibrosis since my diagnosis at the age of 5. My cancer journey started a year ago with a visit to the emergency room. It was late in the afterno [...]
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Cystic Fibrosis and Bone Disease: Who is at risk?
Cystic Fibrosis and Bone Disease: Who is at risk? The prevalence of bone disease in people with CF is thought to be close to one in three individuals. Poor bone health in CF is likely a result of multiple factors, including m [...]
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Be ready! Get Your CF Emergency Supply List!
Be ready! Get Your CF Emergency Supply List! Created by CFRI's CF Adult Advisory CommitteeEmergency Family Planning Sheet for fire, earthquake, hurricane, and winter storms:https://www.cfri.org/wp-content/uploads/2022/11/Fami [...]
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Cystic Fibrosis is my superpower – is it yours?
Cystic Fibrosis is my superpower – is it yours? Lisa Bentley shares how Cystic Fibrosis gave her life purpose. I have been blessed with so many incredible opportunities. I have been a high school math teacher, a professional [...]
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Colon Cancer and CF
By Anna Payne - Do You Have CF? A Colonoscopy Can Save Your Life Last year, at the age of 34, I was living in a place of hope. I was thriving on Trikafta, working full time, serving as elected Supervisor for Middletown Townsh [...]
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Living with Skin Cancer
By Elyse Elconin Goldberg - Life with Cystic Fibrosis is an ever-changing journey. Just when you think you have a grasp of all that taking care of yourself entails, another diagnosis gets added to your plate. Welco [...]
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Motivation to Exercise with CF
By Devin Wakefield - Keep Moving When You Hate Everything Days come when I need to dig deeper to motivate myself. I’m tired, I’m sad, I’m scared. I don’t want to. Whatever is going on in life, sometimes I might need some help [...]
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Food Insecurity and CF
By Georgia B. - In 2019, researchers from the Milken Institute School of Public Health at George Washington University administered the “Cystic Fibrosis Health Insurance Survey.” While this survey is conducted periodically to [...]
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