To fund research, provide educational and personal support and spread awareness of cystic fibrosis, a life-threatening genetic disease.
Cystic Fibrosis Research, Inc. is a nonprofit organization that funds innovative cystic fibrosis (CF) research and offers education, advocacy and psychosocial support programs to those affected by CF.
Inform, engage and empower the cystic fibrosis community to reach the highest possible quality of life, as we work towards a cure.
WHAT IS CF?
Cystic fibrosis (CF) is a rare genetic, chronic, progressive disease that affects over 30,000 people in the United States, and over 70,000 people worldwide. While most people associate cystic fibrosis with progressive lung disease, CF impacts the respiratory, digestive, reproductive, and endocrine systems. Once considered a childhood disease, over half of those living with CF in the United States are over the age of 18. While life expectancy for those recently diagnosed has reached the mid-forties, the median age of death remains only thirty years. Progress in research has led to new therapies that can extend and enhance the lives of those with CF, but there is still no cure.