Home

ABOUT US

Infinity sign in purple with lines to separate sections

Mission

To fund research, provide educational and personal support and spread awareness of cystic fibrosis, a life-threatening genetic disease.

 

CFRI

Cystic Fibrosis Research, Inc. is a nonprofit organization that funds innovative cystic fibrosis (CF) research and offers education, advocacy and psychosocial support programs to those affected by CF.

Vision Statement

Inform, engage and empower the cystic fibrosis community to reach the highest possible quality of life, as we work towards a cure.

WHAT IS CF?

Infinity sign in purple with lines to separate sections

Cystic fibrosis (CF) is a rare genetic, chronic, progressive disease that affects over 30,000 people in the United States, and over 70,000 people worldwide. While most people associate cystic fibrosis with progressive lung disease, CF impacts the respiratory, digestive, reproductive, and endocrine systems. Once considered a childhood disease, over half of those living with CF in the United States are over the age of 18. While life expectancy for those recently diagnosed has reached the mid-forties, the median age of death remains only thirty years. Progress in research has led to new therapies that can extend and enhance the lives of those with CF, but there is still no cure.

LEARN MORE

Infinity sign in purple with lines to separate sections

CFRI Community Newsletter
 
SUBSCRIBE

CFRI received 4 stars from Charity Navigator and is recognized as a top-rated charity by Great Nonprofits

GuideStar Logo
Charity Navigator - four star charity
laurel_seal_default