CF & COVID-19 UPDATE
ASK YOUR COVID-19-RELATED QUESTIONS: DR. RICK MOSS WILL ANSWER! As a service to the CF community, Dr. Rick Moss, preeminent CF clinician and researcher at Stanford, will answer your COVID-19-related questions in the next recorded session that will posted here and on CFRI’s Youtube channel.
Submit to firstname.lastname@example.org by Tuesday at noon PT (3:00 pm ET).
SUPPORT GROUPS FOR COVID-19-RELATED STRESS & ANXIETY. April 2, 9, 16 & 23 (5:00 pm PST / 8:00 pm EST). Moderated by Yelizaveta Sher, MD, psychiatrist at the Adult CF Center at Stanford. CFRI will host a weekly online discussion/support group for members of the CF community. This is an open format via Zoom where people can share their experiences and address the anxiety that COVID-19 is triggering in our community. Registration is free. To register, please email email@example.com.
COVID-19 PRECAUTIONS. Evidence demonstrates that the spread of this virus can be slowed with decisive and early action. Public health measures such as hand hygiene, respiratory etiquette and social distancing are encouraged for all individuals. This virus can be particularly dangerous for those with CF due to the rapid onset of respiratory complications. CFRI recommends that individuals with CF and their families and friends utilize extra precautionary measures, including washing hands frequently, not touching one’s face, disinfecting surfaces and spaces frequently (including desks, doorknobs, cell phones, etc.), avoiding large gatherings, and if possible, staying home. For those with CF, the use of masks in public is recommended. In case of quarantine, seek to have adequate medication on hand.
A helpful list of recommendations has been posted by the Centers for Disease Control and Prevention.
Please click here to review.
CFRI RELEASES RECORDING OF TOWN HALL DISCUSSION ON CF AND COVID-19. On March 17, CFRI hosted a Town Hall discussion via Zoom and Facebook Live to provide COVID-19 information and resources to our CF community. Dr. Rick Moss, CF clinician and researcher at Stanford, and Dr. Yelizaveta Sher, psychiatrist at the Adult CF Center at Stanford, provided overviews of the physical and mental health-related impacts of the virus on those with CF, and then answered questions from our community. To watch in its entirety, click here.
To fund research, provide educational and personal support and spread awareness of cystic fibrosis, a life-threatening genetic disease.
Cystic Fibrosis Research, Inc. is a nonprofit organization that funds innovative cystic fibrosis (CF) research and offers education, advocacy and psychosocial support programs to those affected by CF.
Inform, engage and empower the cystic fibrosis community to reach the highest possible quality of life, as we work towards a cure.
WHAT IS CF?
Cystic fibrosis (CF) is a rare genetic, chronic, progressive disease that affects over 30,000 people in the United States, and over 70,000 people worldwide. While most people associate cystic fibrosis with progressive lung disease, CF impacts the respiratory, digestive, reproductive, and endocrine systems. Once considered a childhood disease, over half of those living with CF in the United States are over the age of 18. While life expectancy for those recently diagnosed has reached the mid-forties, the median age of death remains only thirty years. Progress in research has led to new therapies that can extend and enhance the lives of those with CF, but there is still no cure.