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Living Mindfully with CF

Online MBSR-Themed Class
Created and Led by Julie Desch, MD

Free for individuals with CF 
CF Parents/Spouses/Caregivers

Interactive Online Class Begins Tuesday, July 17th
Weekly Thereafter 6:15 pm – 7:45 pm PST
Created and led by Julie Desch, MD

CFRI’s online “Living Mindfully with CF” class draws upon Mindfulness-Based Stress Reduction techniques, focusing these practices specifically to living with CF. 

  • Class One (July 17): Introduction to Mindfulness
  • Class Two (July 24): Mindfulness of Body and Breath
  • Class Three (July 31): Mindfulness of Thinking
  • Class Four (August 7): Mindfulness of Emotion
  • Mini-Retreat (Saturday, August 11): Morning Meditation
  • Class Five (August 14): Working With Uncertainty
  • Class Six (August 21): Self-Compassion and Resilience

All registrants must be at least 16 years old.


Sponsored by Vertex Pharmaceuticals, Genentech and Gilead Sciences.

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CF Caregivers Support Groups

Third Tuesday of Every Month
 May 15 • June 19 • July 17 • Aug 21
 Sep 18 • Oct 16 •  Nov 20 •  Dec 19

A monthly CF Caregivers Support Group, facilitated by a social worker well versed in issues facing CF caregivers.

Two sessions to choose from:

  • For Parents/Caregivers of Children :: 5:00 pm – 6:00 pm (PST)
  • Parents/Partners/Spouses of Adults with CF (participate in person or by phone) :: 6:00 – 7:00 pm (PST)


Sponsored by Vertex Pharmaceuticals, Gilead Sciences and Genentech.

May, 2018

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Embrace Mothers’ Retreat: SOLD OUT

May 4 – May 6, 2018

Vallombrosa Center
Menlo Park, CA

An annual retreat for mothers of children & adults diagnosed with cystic fibrosis, in recognition of the vital role that mothers have in the care of their loved ones.

SAVE THE DATE: MAY 3 – 5, 2019

Sponsored by Vertex Pharmaceuticals, AbbVie and Gilead Sciences.

August, 2018

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CFRI 31st National CF Family Education Conference

Bridges to the Future

August 3 – August 5, 2018

Pullman San Francisco Bay
Redwood City, CA

A weekend conference that brings together those impacted by CF – including patients and families – with CF scientists, clinicians and experts in the field of CF from across the United States.


Sponsored to date by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and the Boomer Esiason Foundation.

2018 CF Summer Retreat

August 16 – August 21, 2018

Vallombrosa Center
Menlo Park, CA

CF community gathers in a safe and welcoming environment that helps enhance positive coping skills, social support and education for people who share common experiences with CF.


Sponsored by AbbVie and Gilead Sciences.

September, 2018

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CFRI’s Enchanting Adventure at Nestldown

September 29, 2018, 5:00 pm – 10:00 pm (Dancing 8:30 pm – 10:00 pm)

22420 Old Santa Cruz Highway 
Los Gatos, CA 95030

CFRI’s signature Gala event will take place at an extraordinary estate above Los Gatos, CA. Merriment will abound for the 160 attendees, united in their commitment to cystic fibrosis (CF) research and services as well as their enjoyment of gourmet food and fine wine.

Mark your calendars for this very special opportunity to support CFRI in a spectacular venue, and help find a cure for those impacted by CF, the most common fatal genetic disease in the U.S.

Sponsorships and tickets available! Please click Buy Tickets or contact Tony Adessa, CFRI Development Manager, at or 650.665.7586.


Sponsored to date by Vertex Pharmaceuticals, AbbVie, Chiesi USA, Gilead Sciences, and NBC Bay Area.

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For information or to register for these events, please email or call 650.665.7576.