Events

 

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April 2020

Support Group for COVID-19-Related Stress and Anxiety

Thursday, April 9, 2020, 5:00 pm PST / 8:00 pm EST Coronavirus and Risk Reduction

Moderated by Yelizaveta Sher, MD, psychiatrist at the Adult CF Center at Stanford.

CFRI will host a weekly online discussion/support group for members of the CF community. This is an open format via Zoom where people can share their experiences and address the anxiety that COVID-19 is triggering in our community.

No registration required. To participate, go to https://zoom.us/j/519241333.

Support Group for COVID-19-Related Stress and Anxiety

Thursday, April 16, 2020, 5:00 pm PST / 8:00 pm EST Coronavirus and Risk Reduction

Moderated by Yelizaveta Sher, MD, psychiatrist at the Adult CF Center at Stanford.

CFRI will host a weekly online discussion/support group for members of the CF community. This is an open format via Zoom where people can share their experiences and address the anxiety that COVID-19 is triggering in our community.

No registration required. To participate, go to https://zoom.us/j/519241333.

Online Support Group for Adults with CF

Monday, April 20, 2020

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To attend by phone or video call, you should go to https://zoom.us/j/484314120

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

CF Caregivers Support Groups

Tuesday, April 21, 2020

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To Attend in Person:

730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)

To Participate by Phone or Video Conference:

To attend by phone or video call, Parents of Children should go to https://zoom.us/s/555433812

To attend by phone or video call, Parents/ Spouses/ Partners of Adults should go to https://zoom.us/s/832557859

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.

Support Group for COVID-19-Related Stress and Anxiety

Thursday, April 23, 2020, 5:00 pm PST / 8:00 pm EST Coronavirus and Risk Reduction

Moderated by Yelizaveta Sher, MD, psychiatrist at the Adult CF Center at Stanford.

CFRI will host a weekly online discussion/support group for members of the CF community. This is an open format via Zoom where people can share their experiences and address the anxiety that COVID-19 is triggering in our community.

No registration required. To participate, go to https://zoom.us/j/519241333.

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May 2020

Embrace: A Weekend Retreat for Mothers of Children and Adults with CF

Due to the COVID-19 pandemic, the in-person Retreat has been cancelled and replaced by a virtual Retreat on Saturday, May 2.

CFRI hosts this annual retreat for mothers of children & adults diagnosed with cystic fibrosis, in recognition of the vital role that mothers have in the care of their loved ones. Studies show that mothers of children with cystic fibrosis have extremely high rates of anxiety and depression, and that this may have a direct impact on their children’s adherence to their medical regimen. Through educational presentations, therapeutic art and journaling workshops, yoga, support groups, and the sharing of CF resources, women who share the CF path leave the weekend better prepared for the challenges presented by the disease. Embrace offers an opportunity for all participants to connect and rejuvenate. Evaluations of Embrace participants show that the weekend is extremely effective in lowering rates of depression and anxiety, and provides mothers with educational resources and strategies to utilize upon their return home.

Sponsored to date by Vertex Pharmaceuticals, AbbVie, and Gilead Sciences.

Online Support Group for Adults with CF

Monday, May 18, 2020

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To attend by phone or video call, you should go to https://zoom.us/j/484314120

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

CF Caregivers Support Groups

Tuesday, May 19, 2020

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To Attend in Person:

730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)

To Participate by Phone or Video Conference:

To attend by phone or video call, Parents of Children should go to https://zoom.us/s/555433812

To attend by phone or video call, Parents/ Spouses/ Partners of Adults should go to https://zoom.us/s/832557859

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.

Cystic Fibrosis Online Bereavement Support Group

Starting Tuesday, May 19, 2020,5:30 pm PST

This structured eight-week online group for those who have lost a loved one to cystic fibrosis will be led by Isabel Stenzel Byrnes, LCSW, MPH, bereavement social worker at Mission Hospice who has lived with cystic fibrosis for 48 years. Sessions will be held weekly on Tuesdays, beginning May 19 through July 7, 5:30 pm – 7:00 pm PT / 8:30 pm – 10:00 pm ET.

Registration is free, and limited to 12 participants.

Topics will include sharing and discussion, journaling/ writing, goal setting, grief education, self-care strategies, and focus on one’s emerging self. 

REGISTER NOW!

Made possible through grants from Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, and Genentech.

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June 2020

Online Support Group for Adults with CF

Monday, June 22, 2020

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To attend by phone or video call, you should go to https://zoom.us/j/484314120

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

CF Caregivers Support Groups

Tuesday, June 23, 2020

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To Attend in Person:

730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)

To Participate by Phone or Video Conference:

To attend by phone or video call, Parents of Children should go to https://zoom.us/s/555433812

To attend by phone or video call, Parents/ Spouses/ Partners of Adults should go to https://zoom.us/s/832557859

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.

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July 2020

Online Support Group for Adults with CF

Monday, July 20, 2020

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To attend by phone or video call, you should go to https://zoom.us/j/484314120

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

CF Caregivers Support Groups

Tuesday, July 21, 2020

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To Attend in Person:

730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)

To Participate by Phone or Video Conference:

To attend by phone or video call, Parents of Children should go to https://zoom.us/s/555433812

To attend by phone or video call, Parents/ Spouses/ Partners of Adults should go to https://zoom.us/s/832557859

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.

CF Summer Retreat

Saturday, July 25, 2020 – Friday, July 31, 2020

Vallombrosa Retreat Center, Menlo Park, CA

The CF Summer Retreat provides a safe and welcoming environment, created to enhance education, positive coping skills, and social support for people who share common experiences with CF. Evaluations from previous Retreat attendees show that it successfully provided new information about CF therapies and treatments, improved psychosocial health, and provided resources and strategies for coping with the daily challenges of CF. The retreat is filled with various activities such as:

  • Daily exercise activities tailored to individuals’ unique capacities;
  • Educational workshops with guest speakers, addressing such issues as transplant, gastrointestinal issues and CF, hemoptysis, nutrition, and CF sinus disease;
  • Daily rap sessions (support groups) to support positive mental health;
  • Special events and dedicated time to connect, network, and socialize with others.

Eligibility:

  • Adults 18 years and older with cystic fibrosis, their family members, and friends are welcome
  • All participants must adhere to CFRI’s Cross Infection Control Policy

STAY TUNED FOR REGISTRATION!

 

CFRI’s 33rd National CF Education Conference: Partners in Progress

Friday, July 31, 2020 – Sunday, August 2, 2020

Pullman SF Bay Hotel, Redwood City, CA

This annual weekend conference brings together those impacted by cystic fibrosis (CF) – including patients and families – with CF scientists, clinicians and experts in the field of CF from across the United States.

Conference features:

  • Updates on new therapies and vital CF-related topics addressed by nationally renowned presenters
  • Access to pharmaceutical and medical technology representatives
  • Support Groups and Workshops
  • Receptions, awards & networking with CF community peers

REGISTER NOW!

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For information or to register for these events, please email cfri@cfri.org or call 650.665.7576.