Events

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March 2024

CF Spring Retreat

Friday, March 15, to Sunday, March 17, 2024

A virtual Retreat for Adults with CF, their family members and friends. Created to enhance education, coping skills, and social support for adults with CF, the retreat includes presentations by CF experts and special guests, as well as daily exercise activities, arts and crafts, support group sessions, and more.

Register here for the Spring Retreat.

A schedule of events and a link to join will be mailed to registrants before the event.

CF Spring Retreat is sponsored to date by Vertex Pharmaceuticals, Kelly Colgan Golf Classic Benefit, and Devin Wakefield.

Online Support Group for Adults with CF

Monday, March 18, 2024, 5:30 pm PT

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).

Register here for the Support Group for Adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

CF Caregivers Support Groups

Tuesday, March 19, 2024

CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PT
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PT

Register here for the Caregivers Support Group for parents of children with CF.

Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Virtual Support Group for Teens with CF

Wednesday, March 20, 2024, 5:30 pm PT (8:30 pm ET)

This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, and Deborah Menet, LCSW, social workers at the Stanford CF Center.

Parents must provide consent for their teenagers to attend.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Post-Transplant Support Group for Adults with CF

Wednesday, March 27, 2024, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

Register here for the Transplant Support Group.

You will only have to register once to attend any meeting.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Infinity sign in purple with lines to separate sections

April 2024

Navigating Grief to Growth – Bereavement Support Group

Tuesday, April 2, 2024, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

Register here for the Bereavement Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Support Group for Adults with a Late CF Diagnosis

Wednesday, April 3, 2024, 5:00 pm – 6:30 pm PT

A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.

Register here for the Late Diagnosis Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Virtual Community Meeting for the Spanish-Speaking CF Community

Wednesday, April 10, 2024, 5:00 pm PT (8:00 pm ET)

This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF.

The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Online Support Group for Adults with CF

Monday, April 15, 2024, 5:30 pm PT

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).

Register here for the Support Group for Adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

CF Caregivers Support Groups

Tuesday, April 16, 2024

CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PT
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PT

Register here for the Caregivers Support Group for parents of children with CF.

Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Virtual Support Group for Teens with CF

Wednesday, April 17, 2024, 5:30 pm PT (8:30 pm ET)

This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, and Deborah Menet, LCSW, social workers at the Stanford CF Center.

Parents must provide consent for their teenagers to attend.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Post-Transplant Support Group for Adults with CF

Wednesday, April 24, 2024, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

Register here for the Transplant Support Group.

You will only have to register once to attend any meeting.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Infinity sign in purple with lines to separate sections

May 2024

Support Group for Adults with a Late CF Diagnosis

Wednesday, May 1, 2024, 5:00 pm – 6:30 pm PT

A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.

Register here for the Late Diagnosis Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Embrace Mothers Retreat

Friday, May 3, to Sunday, May 5, 2024

CFRI hosts this annual retreat for mothers of children and adults diagnosed with cystic fibrosis, in recognition of the vital role that mothers have in the care of their loved ones. Studies show that mothers of children with cystic fibrosis have extremely high rates of anxiety and depression, and that this may have a direct impact on their children’s adherence to their medical regimen.

Through art workshops, yoga, journaling, CF resources, and respite time, CFRI’s Embrace Mothers Retreat offers an opportunity for women who share the CF path to connect and rejuvenate.

Embrace Mothers Retreat will take place at the beautiful Vallombrosa Retreat Center in Menlo Park, California.

Register here for the Embrace Mothers Retreat.

Embrace Mothers Retreat is sponsored to date by Vertex Pharmaceuticals.

Navigating Grief to Growth – Bereavement Support Group

Tuesday, May 7, 2024, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

Register here for the Bereavement Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Virtual Community Meeting for the Spanish-Speaking CF Community

Wednesday, May 8, 2024, 5:00 pm PT (8:00 pm ET)

This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF.

The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Virtual Support Group for Teens with CF

Wednesday, May 15, 2024, 5:30 pm PT (8:30 pm ET)

This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, and Deborah Menet, LCSW, social workers at the Stanford CF Center.

Parents must provide consent for their teenagers to attend.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Online Support Group for Adults with CF

Monday, May 20, 2024, 5:30 pm PT

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).

Register here for the Support Group for Adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

CF Caregivers Support Groups

Tuesday, May 21, 2024

CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PT
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PT

Register here for the Caregivers Support Group for parents of children with CF.

Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Post-Transplant Support Group for Adults with CF

Wednesday, May 22, 2024, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

Register here for the Transplant Support Group.

You will only have to register once to attend any meeting.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Infinity sign in purple with lines to separate sections

June 2024

Navigating Grief to Growth – Bereavement Support Group

Tuesday, June 4, 2024, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

Register here for the Bereavement Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Support Group for Adults with a Late CF Diagnosis

Wednesday, June 5, 2024, 5:00 pm – 6:30 pm PT

A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.

Register here for the Late Diagnosis Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Virtual Community Meeting for the Spanish-Speaking CF Community

Wednesday, June 12, 2024, 5:00 pm PT (8:00 pm ET)

This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF.

The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Online Support Group for Adults with CF

Monday, June 17, 2024, 5:30 pm PT

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).

Register here for the Support Group for Adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

CF Caregivers Support Groups

Tuesday, June 18, 2024

CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PT
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PT

Register here for the Caregivers Support Group for parents of children with CF.

Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Virtual Support Group for Teens with CF

Wednesday, June 19, 2024, 5:30 pm PT (8:30 pm ET)

This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, and Deborah Menet, LCSW, social workers at the Stanford CF Center.

Parents must provide consent for their teenagers to attend.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

Post-Transplant Support Group for Adults with CF

Wednesday, June 26, 2024, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

Register here for the Transplant Support Group.

You will only have to register once to attend any meeting.

CFRI’s support groups are sponsored to date by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.

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For information or to register for these events, please email cfri@cfri.org or call 650.665.7576.