Events

 

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January 2020

Online Support Group for Adults with CF

Monday, January 20, 2020

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To attend by phone or video call, you should go to https://zoom.us/j/484314120

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

CF Caregivers Support Groups

Tuesday, January 21, 2020

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To Attend in Person:

730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)

To Participate by Phone or Video Conference:

To attend by phone or video call, Parents of Children should go to https://zoom.us/s/555433812

To attend by phone or video call, Parents/ Spouses/ Partners of Adults should go to https://zoom.us/s/832557859

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.

Infinity sign in purple with lines to separate sections

February 2020

Online Support Group for Adults with CF

Monday, February 17, 2020

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To attend by phone or video call, you should go to https://zoom.us/j/484314120

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

CF Caregivers Support Groups

Tuesday, February 18, 2020

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To Attend in Person:

730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)

To Participate by Phone or Video Conference:

To attend by phone or video call, Parents of Children should go to https://zoom.us/s/555433812

To attend by phone or video call, Parents/ Spouses/ Partners of Adults should go to https://zoom.us/s/832557859

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.

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March 2020

Living Mindfully with CF Online Class

Starting Tuesday, March 3, 2020, 4:15 pm PST / 7:15 pm EST

This 6-week interactive online class, led by Julie Desch, MD, draws upon Mindfulness Based Stress Reduction techniques, including yoga, breathing and meditation, focusing these practices specifically to living with CF.

Registration is free for those with CF, their family members, spouses and caregivers. Classes are recorded, so if you miss a session, you may participate later and stay up to date.

Classes will be held on Tuesdays, from 4:15 pm to 5:30 pm PST (7:15 pm – 8:30 pm EST), starting March 3. While there is no charge, you must register for the class in order to participate, and complete a pre-and post-class questionnaire. All registrants must be at least 16 years old.

Class schedule:
Class One (March 3): Introduction to Mindfulness
Class Two (March 10): Mindfulness of Body and Breath
Class Three (March 17): Mindfulness of Thinking
Class Four (March 24): Mindfulness of Emotion
Class Five (March 31): Working with Uncertainty
Class Six (April 7): Self-Compassion and Resilience

REGISTER NOW!

Online Support Group for Adults with CF

Monday, March 16, 2020

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To attend by phone or video call, you should go to https://zoom.us/j/484314120

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

CF Caregivers Support Groups

Tuesday, March 17, 2020

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To Attend in Person:

730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)

To Participate by Phone or Video Conference:

To attend by phone or video call, Parents of Children should go to https://zoom.us/s/555433812

To attend by phone or video call, Parents/ Spouses/ Partners of Adults should go to https://zoom.us/s/832557859

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.

Infinity sign in purple with lines to separate sections

April 2020

Online Support Group for Adults with CF

Monday, April 20, 2020

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To attend by phone or video call, you should go to https://zoom.us/j/484314120

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

CF Caregivers Support Groups

Tuesday, April 21, 2020

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To Attend in Person:

730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)

To Participate by Phone or Video Conference:

To attend by phone or video call, Parents of Children should go to https://zoom.us/s/555433812

To attend by phone or video call, Parents/ Spouses/ Partners of Adults should go to https://zoom.us/s/832557859

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.

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May 2020

Embrace: A Weekend Retreat for Mothers of Children and Adults with CF

Friday, May 1, 2020 – Sunday, May 3, 2020

Vallombrosa Retreat Center, Menlo Park, CA

CFRI hosts this annual retreat for mothers of children & adults diagnosed with cystic fibrosis, in recognition of the vital role that mothers have in the care of their loved ones. Studies show that mothers of children with cystic fibrosis have extremely high rates of anxiety and depression, and that this may have a direct impact on their children’s adherence to their medical regimen. Through educational presentations, therapeutic art and journaling workshops, yoga, support groups, and the sharing of CF resources, women who share the CF path leave the weekend better prepared for the challenges presented by the disease. Embrace offers an opportunity for all participants to connect and rejuvenate. Evaluations of Embrace participants show that the weekend is extremely effective in lowering rates of depression and anxiety, and provides mothers with educational resources and strategies to utilize upon their return home.

STAY TUNED FOR REGISTRATION!

Online Support Group for Adults with CF

Monday, May 18, 2020

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To attend by phone or video call, you should go to https://zoom.us/j/484314120

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

CF Caregivers Support Groups

Tuesday, May 19, 2020

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To Attend in Person:

730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)

To Participate by Phone or Video Conference:

To attend by phone or video call, Parents of Children should go to https://zoom.us/s/555433812

To attend by phone or video call, Parents/ Spouses/ Partners of Adults should go to https://zoom.us/s/832557859

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.

Infinity sign in purple with lines to separate sections

June 2020

Online Support Group for Adults with CF

Monday, June 22, 2020

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To attend by phone or video call, you should go to https://zoom.us/j/484314120

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

CF Caregivers Support Groups

Tuesday, June 23, 2020

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To Attend in Person:

730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)

To Participate by Phone or Video Conference:

To attend by phone or video call, Parents of Children should go to https://zoom.us/s/555433812

To attend by phone or video call, Parents/ Spouses/ Partners of Adults should go to https://zoom.us/s/832557859

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.

Infinity sign in purple with lines to separate sections

July 2020

Online Support Group for Adults with CF

Monday, July 20, 2020

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To attend by phone or video call, you should go to https://zoom.us/j/484314120

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

CF Caregivers Support Groups

Tuesday, July 21, 2020

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To Attend in Person:

730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)

To Participate by Phone or Video Conference:

To attend by phone or video call, Parents of Children should go to https://zoom.us/s/555433812

To attend by phone or video call, Parents/ Spouses/ Partners of Adults should go to https://zoom.us/s/832557859

Please log in early to make sure there are no technical problems.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.

CF Summer Retreat

Saturday, July 25, 2020 – Friday, July 31, 2020

Vallombrosa Retreat Center, Menlo Park, CA

The CF Summer Retreat provides a safe and welcoming environment, created to enhance education, positive coping skills, and social support for people who share common experiences with CF. Evaluations from previous Retreat attendees show that it successfully provided new information about CF therapies and treatments, improved psychosocial health, and provided resources and strategies for coping with the daily challenges of CF. The retreat is filled with various activities such as:

  • Daily exercise activities tailored to individuals’ unique capacities;
  • Educational workshops with guest speakers, addressing such issues as transplant, gastrointestinal issues and CF, hemoptysis, nutrition, and CF sinus disease;
  • Daily rap sessions (support groups) to support positive mental health;
  • Special events and dedicated time to connect, network, and socialize with others.

Eligibility:

  • Adults 18 years and older with cystic fibrosis, their family members, and friends are welcome
  • All participants must adhere to CFRI’s Cross Infection Control Policy

STAY TUNED FOR REGISTRATION!

 

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CFRI’s 33rd National CF Education Conference: Partners in Progress

Friday, July 31, 2020 – Sunday, August 2, 2020

Pullman SF Bay Hotel, Redwood City, CA

This annual weekend conference brings together those impacted by cystic fibrosis (CF) – including patients and families – with CF scientists, clinicians and experts in the field of CF from across the United States.

Conference features:

  • Updates on new therapies and vital CF-related topics addressed by nationally renowned presenters
  • Access to pharmaceutical and medical technology representatives
  • Support Groups and Workshops
  • Receptions, awards & networking with CF community peers

STAY TUNED FOR REGISTRATION!

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For information or to register for these events, please email cfri@cfri.org or call 650.665.7576.