CFRI Community Retreats

Embrace: A Weekend Retreat for Mothers of Children & Adults with CF

Friday, May 3 – Sunday, May 5, 2019

Vallombrosa Retreat Center, Menlo Park, CA

CFRI hosts this annual retreat for mothers of children & adults diagnosed with cystic fibrosis, in recognition of the vital role that mothers have in the care of their loved ones. Studies show that mothers of children with cystic fibrosis have extremely high rates of anxiety and depression, and that this may have a direct impact on their children’s adherence to their medical regimen. Through educational presentations, therapeutic art and journaling workshops, yoga, support groups, and the sharing of CF resources, women who share the CF path leave the weekend better prepared for the challenges presented by the disease. Embrace offers an opportunity for all participants to connect and rejuvenate. Evaluations of Embrace participants show that the weekend is extremely effective in lowering rates of depression and anxiety, and provides mothers with educational resources and strategies to utilize upon their return home.

Registration fee

  • $150: Includes two nights in a single occupancy room at Vallombrosa, meals, workshops, & retreat events (limited to 23 rooms)
  • $75: includes meals, workshops & retreat events (no overnight stay)

Online registration for overnight stays is closed at this point since we have only a very limited number of rooms left. To check for openings, please contact Sabine Brants (sbrants@cfri.org). You can use the link below to sign up for commuter spots (no overnight stay at Vallombrosa.)

REGISTER  

“This retreat was life changing! It is so wonderful to be with other women who understand the challenges we face raising our children with CF.”  Mother of an adult daughter with CF

Embrace Retreat is made possible through grants from AbbVie and Gilead Sciences

 

2019 CF Summer Retreat

Saturday, July 20 – Friday, July 26, 2019

Vallombrosa Retreat Center, Menlo Park CA

The 2019 CF Summer Retreat provides a safe and welcoming environment, created to enhance education, positive coping skills, and social support for people who share common experiences with CF. Evaluations from previous Retreat attendees show that it successfully provided new information about CF therapies and treatments, improved psychosocial health, and provided resources and strategies for coping with the daily challenges of CF. The retreat is filled with various activities such as:

  • Daily exercise activities tailored to individuals’ unique capacities;
  • Educational workshops with guest speakers, addressing such issues as transplant, gastrointestinal issues and CF, hemoptysis, nutrition, and CF sinus disease;
  • Daily rap sessions (support groups) to support positive mental health;
  • Special events and dedicated time to connect, network, and socialize with others.

Eligibility

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I don’t quite know how to express how being in a room with others who have cystic fibrosis feels. Online connection is great, but being physically present with a group of your peers – it’s simply unparalleled. I ended up connecting with the most welcoming and understanding group of people that I’ve ever met. I plan on returning for many years to come.  – Colleen L.

CF Summer Retreat is generously sponsored by AbbVie and Gilead Sciences