Events

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February 2026

Conocimiento y Conexión

Wednesday, February 11, 2026, 5:00 pm PT (8:00 pm ET)

This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF. The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.

For more information and to register, send an email to CFRI.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Support Group for Adults with CF

Monday, February 16, 2026, 5:30 pm PT

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford. The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).

Register here for the Support Group for Adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

CF Caregivers Support Groups

Tuesday, February 17, 2026

CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Two groups to choose from:

  • Parents of children with CF: 5:00 pm – 6:00 pm PT
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PT

Register here for the Caregivers Support Group for parents of children with CF.

Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

CF Teen Connection

Wednesday, February 18, 2026, 5:30 pm PT (8:30 pm ET)

CFRI’s virtual hangout for individuals with CF between the ages of 13 and 17. Meet other teens with CF, learn more about topics directly impacting you, and engage in fun activities that foster connection. Whether you want to come and share or just listen, the choice is completely up to you and based on your level of comfort. Facilitated by CF Social Worker Teresa Priestley, MSW. Parents must provide consent for their teenagers to attend.

To sign up and join the next hangout, send an email to Sabine @ CFRI.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Dance Like a Fool

Friday, February 20, 2026, 6:00 pm PT (9:00 pm ET)

Join CFRI and your CF community for our fifth annual Dance Like a Fool!⁠ The 3-hour virtual dance-a-thon is held in memory of CFRI staff member Danielle Mandella, who created the event in 2022. Dance for 3 minutes or 3 hours – we want to see you! Register as a solo dancer or gather your friends and family to participate as a team. Not a dancer? You can make a donation in support of a participant. All donations will benefit CFRI’s CF Wellness Programs.

Register now to Dance Like a Fool. 

Support Group for Adults with CF Post-Transplant

Wednesday, February 25, 2026, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

Register here for the Transplant Support Group.

You will only have to register once to attend any meeting.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Support Group for Those Unable to Use CFTR Modulators

Thursday, February 26, 2026, 5:00 pm PT

About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.

Register here for this Support Group.

You will only have to register once to attend any meeting.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

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March 2026

Workshop: Best Practices for Promoting Diversity, Equity and Inclusion

Monday, March 2, 2026, 12:00 pm PT

Join us for an engaging conversation focused on promoting equity and inclusion within the CF clinic setting. Discover innovative, patient-centered initiatives CF care teams are using to improve care in clinics across North America. This workshop will be facilitated by CF social worker Claire Haglund, PhD, LMSW, from Children’s Hospital of Michigan and will highlight best-practice examples.

Register here for this workshop.

Made possible with support from Genentech and Viatris.

Navigating Grief to Growth – Bereavement Support Group

Tuesday, March 3, 2026, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

Register here for the Bereavement Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Support Group for Adults with a Late CF Diagnosis

Wednesday, March 4, 2026, 5:00 pm – 6:30 pm PT

A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.

Register here for the Late Diagnosis Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Workshop: Mindfulness to Manage Pain in CF

Tuesday, March 10, 2026, 5:00 pm PT

In 2026, CFRI is hosting quarterly workshops that focus on different aspects of mindfulness and how it can offer positive coping skills for those living with CF. This workshop will focus on useful mindfulness practices to help manage pain related to CF.

The workshop will be facilitated by Julie Desch, MD, certified mindfulness instructor and person living with CF and pain. There will be a short practice and room for questions.

Register here for this workshop.

Made possible with support from Viatris, Genentech, and individual donors.

Conocimiento y Conexión

Wednesday, March 11, 2026, 5:00 pm PT (8:00 pm ET)

This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF. The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.

For more information and to register, send an email to CFRI.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Support Group for Adults with CF

Monday, March 16, 2026, 5:30 pm PT

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford. The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).

Register here for the Support Group for Adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

CF Caregivers Support Groups

Tuesday, March 17, 2026

CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Two groups to choose from:

  • Parents of children with CF: 5:00 pm – 6:00 pm PT
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PT

Register here for the Caregivers Support Group for parents of children with CF.

Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

CF Teen Connection

Wednesday, March 18, 2026, 5:30 pm PT (8:30 pm ET)

CFRI’s virtual hangout for individuals with CF between the ages of 13 and 17. Meet other teens with CF, learn more about topics directly impacting you, and engage in fun activities that foster connection. Whether you want to come and share or just listen, the choice is completely up to you and based on your level of comfort. Facilitated by CF Social Worker Teresa Priestley, MSW. Parents must provide consent for their teenagers to attend.

To sign up and join the next hangout, send an email to Sabine @ CFRI.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Support Group for Adults with CF Post-Transplant

Wednesday, March 25, 2026, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

Register here for the Transplant Support Group.

You will only have to register once to attend any meeting.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Support Group for Those Unable to Use CFTR Modulators

Thursday, March 26, 2026, 5:00 pm PT

About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.

Register here for this Support Group.

You will only have to register once to attend any meeting.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

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April 2026

Support Group for Adults with a Late CF Diagnosis

Wednesday, April 1, 2026, 5:00 pm – 6:30 pm PT

A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.

Register here for the Late Diagnosis Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

CF Spring Retreat

Monday, April 6, 2026, to Friday, April 10, 2026

Please join us for CFRI’s CF Spring Retreat at El Retiro Retreat Center in Los Altos, CA. The Retreat enhances social support for adults with CF (18 years or older) and includes educational presentations by CF experts and special guests, daily exercise, arts and crafts, support groups, and more. Attendees with CF may invite family members or friends. Scholarships are available – see registration page for details.

Register to join in person or virtually.

Sponsored to date by Vertex Pharmaceuticals and individual donors.

Navigating Grief to Growth – Bereavement Support Group

Tuesday, April 7, 2026, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

Register here for the Bereavement Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Conocimiento y Conexión

Wednesday, April 8, 2026, 5:00 pm PT (8:00 pm ET)

This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF. The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.

For more information and to register, send an email to CFRI.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

CF Teen Connection

Wednesday, April 15, 2026, 5:30 pm PT (8:30 pm ET)

CFRI’s virtual hangout for individuals with CF between the ages of 13 and 17. Meet other teens with CF, learn more about topics directly impacting you, and engage in fun activities that foster connection. Whether you want to come and share or just listen, the choice is completely up to you and based on your level of comfort. Facilitated by CF Social Worker Teresa Priestley, MSW. Parents must provide consent for their teenagers to attend.

To sign up and join the next hangout, send an email to Sabine @ CFRI.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Support Group for Adults with CF

Monday, April 20, 2026, 5:30 pm PT

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford. The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).

Register here for the Support Group for Adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

CF Caregivers Support Groups

Tuesday, April 21, 2026

CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Two groups to choose from:

  • Parents of children with CF: 5:00 pm – 6:00 pm PT
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PT

Register here for the Caregivers Support Group for parents of children with CF.

Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Support Group for Adults with CF Post-Transplant

Wednesday, April 22, 2026, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

Register here for the Transplant Support Group.

You will only have to register once to attend any meeting.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Support Group for Those Unable to Use CFTR Modulators

Thursday, April 23, 2026, 5:00 pm PT

About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.

Register here for this Support Group.

You will only have to register once to attend any meeting.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

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May 2026

Embrace Mothers Retreat

Friday, May 1, 2026, to Sunday, May 3, 2026

CFRI’s annual Embrace Mothers Retreat will take place from Friday, May 1 to Sunday, May 3, 2026, at the beautiful Vallombrosa Retreat Center in Menlo Park, California. The retreat offers art, yoga, writing, CF resources, advocacy, support, and respite time with women who share the CF path. Whether your child with CF is a baby or an adult, you are warmly encouraged to attend.

Register here for the Embrace Mothers Retreat.

Supported to date by Vertex Pharmaceuticals, AbbVie, and individual donors.

Navigating Grief to Growth – Bereavement Support Group

Tuesday, May 5, 2026, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

Register here for the Bereavement Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Support Group for Adults with a Late CF Diagnosis

Wednesday, May 6, 2026, 5:00 pm – 6:30 pm PT

A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.

Register here for the Late Diagnosis Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Conocimiento y Conexión

Wednesday, May 13, 2026, 5:00 pm PT (8:00 pm ET)

This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF. The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.

For more information and to register, send an email to CFRI.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Support Group for Adults with CF

Monday, May 18, 2026, 5:30 pm PT

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford. The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).

Register here for the Support Group for Adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

CF Caregivers Support Groups

Tuesday, May 19, 2026

CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Two groups to choose from:

  • Parents of children with CF: 5:00 pm – 6:00 pm PT
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PT

Register here for the Caregivers Support Group for parents of children with CF.

Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

CF Teen Connection

Wednesday, May 20, 2026, 5:30 pm PT (8:30 pm ET)

CFRI’s virtual hangout for individuals with CF between the ages of 13 and 17. Meet other teens with CF, learn more about topics directly impacting you, and engage in fun activities that foster connection. Whether you want to come and share or just listen, the choice is completely up to you and based on your level of comfort. Facilitated by CF Social Worker Teresa Priestley, MSW. Parents must provide consent for their teenagers to attend.

To sign up and join the next hangout, send an email to Sabine @ CFRI.

 

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Support Group for Adults with CF Post-Transplant

Wednesday, May 27, 2026, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

Register here for the Transplant Support Group.

You will only have to register once to attend any meeting.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

Support Group for Those Unable to Use CFTR Modulators

Thursday, May 28, 2026, 5:00 pm PT

About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.

Register here for this Support Group.

You will only have to register once to attend any meeting.

All 2026 CFRI support groups are supported to date by Viatris, Genentech, private donors and bequests.

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For information or to register for these events, please email cfri@cfri.org or call 650.665.7576.