August 2025
Support Group for Adults with CF Post-Transplant
Wednesday, August 27, 2025, 5:00 pm PT
This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.
Register here for the Transplant Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Those Unable to Use CFTR Modulators
Thursday, August 28, 2025, 5:00 pm PT
About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.
Register here for this Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
September 2025
Navigating Grief to Growth – Bereavement Support Group
Tuesday, September 2, 2025, 5:00 pm – 6:30 pm PT
A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.
Register here for the Bereavement Support Group.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Adults with a Late CF Diagnosis
Wednesday, September 3, 2025, 5:00 pm – 6:30 pm PT
A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.
Register here for the Late Diagnosis Support Group.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Conocimiento y Conexión
Wednesday, September 10, 2025, 5:00 pm PT (8:00 pm ET)
This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF. The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Virtual Embrace Mini Retreat
Saturday, September 13, 2025, 9:00 am – 12:30 pm PT (12:00 pm – 3:30 pm ET)
This virtual mini-retreat is for mothers of children and adults diagnosed with cystic fibrosis. Regardless of whether our children are young or are adults, we play a vital role in their care, and must navigate what sometimes is a difficult path. This fully virtual mini Embrace Mothers Retreat offers an opportunity for women who share the CF journey to connect and rejuvenate.
Find more information and register here.
Sponsored by Vertex Pharmaceuticals and AbbVie.
Support Group for Adults with CF
Monday, September 15, 2025, 5:30 pm PT
CFRI provides a monthly Online Support Group for Adults with CF, 
which is open to participants nationwide. The group is facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford. The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).
Register here for the Support Group for Adults with CF.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
CF Caregivers Support Groups
Tuesday, September 16, 2025
CFRI provides a monthly online CF Caregivers Support Group, which is open to 
participants nationwide. The groups are facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.
Two groups to choose from:
- Parents of children with CF: 5:00 pm – 6:00 pm PT
- Parents/Spouses/Partners of Adults with CF:
6:00 pm – 7:00 pm PT
Register here for the Caregivers Support Group for parents of children with CF.
Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Teens with CF
Wednesday, September 17, 2025, 5:30 pm PT (8:30 pm ET)
This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, social worker at the Stanford CF Center. Parents must provide consent for their teenagers to attend.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Workshop: Mindfulness to Cope with Depression
Tuesday, September 23, 2025, 5:00 pm PT (8:00 pm ET)
CFRI is hosting quarterly workshops focused on aspects of mindfulness for those living with CF. In this workshop, we will explore useful mindfulness practices to manage depression and sadness related to CF. Led by Julie Desch, MD, certified mindfulness instructor and person living with CF. There will be a short practice and room for questions.
Register here for the mindfulness workshop.
Sponsored by Viatris, Vertex Pharmaceuticals, and private donors.
Support Group for Adults with CF Post-Transplant
Wednesday, September 24, 2025, 5:00 pm PT
This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.
Register here for the Transplant Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Those Unable to Use CFTR Modulators
Thursday, September 25, 2025, 5:00 pm PT
About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.
Register here for this Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
October 2025
Support Group for Adults with a Late CF Diagnosis
Wednesday, October 1, 2025, 5:00 pm – 6:30 pm PT
A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.
Register here for the Late Diagnosis Support Group.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Navigating Grief to Growth – Bereavement Support Group
Tuesday, October 7, 2025, 5:00 pm – 6:30 pm PT
A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.
Register here for the Bereavement Support Group.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Conocimiento y Conexión
Wednesday, October 8, 2025, 5:00 pm PT (8:00 pm ET)
This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF. The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
A Breath of Fresh Air ~ Celebrate 50 Years of CFRI!
Saturday, October 11, 2025, 5:30 pm – 10:30 pm PT
Join us in commemorating five decades of progress in cystic fibrosis research as we raise awareness, support groundbreaking research and honor our 2025 CF Champion, John Mark, MD, of Stanford. The gala will be held at the historic Hillsborough Racquet Club in Hillsborough, CA. Delight in a night of inspiration, including a luxury auction, music, dancing and an exceptional dinner with fine wine and spirits. Sponsorship opportunities available.
Sponsored to date by Vertex Pharmaceuticals, Viatris, AbbVie, ReCode Therapeutics, and Heritage Bank.
Support Group for Teens with CF
Wednesday, October 15, 2025, 5:30 pm PT (8:30 pm ET)
This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, social worker at the Stanford CF Center. Parents must provide consent for their teenagers to attend.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Adults with CF
Monday, October 20, 2025, 5:30 pm PT
CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford. The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).
Register here for the Support Group for Adults with CF.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
CF Caregivers Support Groups
Tuesday, October 21, 2025
CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.
Two groups to choose from:
- Parents of children with CF: 5:00 pm – 6:00 pm PT
- Parents/Spouses/Partners of Adults with CF:
6:00 pm – 7:00 pm PT
Register here for the Caregivers Support Group for parents of children with CF.
Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Adults with CF Post-Transplant
Wednesday, October 22, 2025, 5:00 pm PT
This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.
Register here for the Transplant Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Those Unable to Use CFTR Modulators
Thursday, October 23, 2025, 5:00 pm PT
About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.
Register here for this Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
November 2025
Navigating Grief to Growth – Bereavement Support Group
Tuesday, November 4, 2025, 5:00 pm – 6:30 pm PT
A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.
Register here for the Bereavement Support Group.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Adults with a Late CF Diagnosis
Wednesday, November 5, 2025, 5:00 pm – 6:30 pm PT
A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.
Register here for the Late Diagnosis Support Group.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Conocimiento y Conexión
Wednesday, November 12, 2025, 5:00 pm PT (8:00 pm ET)
This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF. The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Adults with CF
Monday, November 17, 2025, 5:30 pm PT
CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford. The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).
Register here for the Support Group for Adults with CF.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
CF Caregivers Support Groups
Tuesday, November 18, 2025
CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.
Two groups to choose from:
- Parents of children with CF: 5:00 pm – 6:00 pm PT
- Parents/Spouses/Partners of Adults with CF:
6:00 pm – 7:00 pm PT
Register here for the Caregivers Support Group for parents of children with CF.
Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Teens with CF
Wednesday, November 19, 2025, 5:30 pm PT (8:30 pm ET)
This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, social worker at the Stanford CF Center. Parents must provide consent for their teenagers to attend.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Adults with CF Post-Transplant
Wednesday, November 19, 2025, 5:00 pm PT
This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.
Register here for the Transplant Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Those Unable to Use CFTR Modulators
Thursday, November 20, 2025, 5:00 pm PT
About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.
Register here for this Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
December 2025
Navigating Grief to Growth – Bereavement Support Group
Tuesday, December 2, 2025, 5:00 pm – 6:30 pm PT
A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.
Register here for the Bereavement Support Group.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Adults with a Late CF Diagnosis
Wednesday, December 3, 2025, 5:00 pm – 6:30 pm PT
A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.
Register here for the Late Diagnosis Support Group.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Conocimiento y Conexión
Wednesday, December 10, 2025, 5:00 pm PT (8:00 pm ET)
This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF. The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Adults with CF
Monday, December 15, 2025, 5:30 pm PT
CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford. The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).
Register here for the Support Group for Adults with CF.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
CF Caregivers Support Groups
Tuesday, December 16, 2025
CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.
Two groups to choose from:
- Parents of children with CF: 5:00 pm – 6:00 pm PT
- Parents/Spouses/Partners of Adults with CF:
6:00 pm – 7:00 pm PT
Register here for the Caregivers Support Group for parents of children with CF.
Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Teens with CF
Wednesday, December 17, 2025, 5:30 pm PT (8:30 pm ET)
This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, social worker at the Stanford CF Center. Parents must provide consent for their teenagers to attend.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Adults with CF Post-Transplant
Wednesday, December 17, 2025, 5:00 pm PT
This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.
Register here for the Transplant Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
Support Group for Those Unable to Use CFTR Modulators
Thursday, December 18, 2025, 5:00 pm PT
About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.
Register here for this Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.
For information or to register for these events, please email cfri@cfri.org or call 650.665.7576.