Events

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August 2025

Workshop: Affirming Patients’ Rights

Wednesday, August 13, 2025, 12:00 pm PT (3:00 pm ET)

CFRI’s third Faces of CF 2025 Diversity Workshop. This virtual session — facilitated by Linda Jenkins, MPAff — is open to people with CF, family members, and CF care team members. Real-world case examples and insights from adults with CF and a CF social worker will explore: hearing loss and informed decision-making, creating safe spaces for LGBTQ+ patients, navigating healthcare as a non-native English speaker, and racial bias and provider advocacy beyond the clinical setting. 

Register for the workshop here

Made possible through grants from AbbVie, Gilead Sciences, ReCode, Genentech, and Viatris.

Conocimiento y Conexión

Wednesday, August 13, 2025, 5:00 pm PT (8:00 pm ET)

This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF.

The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

CF Summer Retreat (Hybrid)

Thursday, August 14, 2025, to Tuesday, August 19, 2025

Adults with CF are invited to join CFRI’s Summer Retreat at the Jesuit Retreat Center in Los Altos, CA. The Retreat enhances social support for adults with CF (18 years or older) and includes educational presentations by CF experts and special guests, daily exercise, arts and crafts, support groups, and more. Attendees with CF may invite family members or friends. 

Register to join in person or virtually.

Sponsored by Vertex Pharmaceuticals, AbbVie, and individual donors.

Support Group for Adults with CF

Monday, August 18, 2025, 5:30 pm PT

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).

Register here for the Support Group for Adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

CF Caregivers Support Groups

Tuesday, August 19, 2025

CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Two groups to choose from:

  • Parents of children with CF: 5:00 pm – 6:00 pm PT
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PT

Register here for the Caregivers Support Group for parents of children with CF.

Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Teens with CF

Wednesday, August 20, 2025, 5:30 pm PT (8:30 pm ET)

This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, social worker at the Stanford CF Center.

Parents must provide consent for their teenagers to attend.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Adults with CF Post-Transplant

Wednesday, August 27, 2025, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

Register here for the Transplant Support Group.

You will only have to register once to attend any meeting.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Those Unable to Use CFTR Modulators

Thursday, August 28, 2025, 5:00 pm PT

About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.

Register here for this Support Group.

You will only have to register once to attend any meeting.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Infinity sign in purple with lines to separate sections

September 2025

Navigating Grief to Growth – Bereavement Support Group

Tuesday, September 2, 2025, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

Register here for the Bereavement Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Adults with a Late CF Diagnosis

Wednesday, September 3, 2025, 5:00 pm – 6:30 pm PT

A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.

Register here for the Late Diagnosis Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Conocimiento y Conexión

Wednesday, September 10, 2025, 5:00 pm PT (8:00 pm ET)

This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF.

The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Adults with CF

Monday, September 15, 2025, 5:30 pm PT

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).

Register here for the Support Group for Adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

CF Caregivers Support Groups

Tuesday, September 16, 2025

CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Two groups to choose from:

  • Parents of children with CF: 5:00 pm – 6:00 pm PT
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PT

Register here for the Caregivers Support Group for parents of children with CF.

Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Teens with CF

Wednesday, September 17, 2025, 5:30 pm PT (8:30 pm ET)

This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, social worker at the Stanford CF Center.

Parents must provide consent for their teenagers to attend.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Workshop: Mindfulness to Cope with Depression

Tuesday, September 23, 2025, 5:00 pm PT (8:00 pm ET)

CFRI is hosting quarterly workshops focused on aspects of mindfulness for those living with CF. In this workshop, we will explore useful mindfulness practices to manage depression and sadness related to CF. Led by Julie Desch, MD, certified mindfulness instructor and person living with CF. There will be a short practice and room for questions.

Register here for the mindfulness workshop.

Sponsored by Viatris, Vertex Pharmaceuticals, and private donors.

Support Group for Adults with CF Post-Transplant

Wednesday, September 24, 2025, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

Register here for the Transplant Support Group.

You will only have to register once to attend any meeting.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Those Unable to Use CFTR Modulators

Thursday, September 25, 2025, 5:00 pm PT

About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.

Register here for this Support Group.

You will only have to register once to attend any meeting.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Infinity sign in purple with lines to separate sections

October 2025

Support Group for Adults with a Late CF Diagnosis

Wednesday, October 1, 2025, 5:00 pm – 6:30 pm PT

A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.

Register here for the Late Diagnosis Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Navigating Grief to Growth – Bereavement Support Group

Tuesday, October 7, 2025, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

Register here for the Bereavement Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Conocimiento y Conexión

Wednesday, October 8, 2025, 5:00 pm PT (8:00 pm ET)

This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF.

The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

A Breath of Fresh Air ~ Celebrate 50 Years of CFRI!

Saturday, October 11, 2025, 5:30 pm – 10:30 pm PT

Join us in commemorating five decades of progress in cystic fibrosis research as we raise awareness, support groundbreaking research and honor our 2025 CF Champion, John Mark, MD, of Stanford. The gala will be held at the historic Hillsborough Racquet Club in Hillsborough, CA. Delight in a night of inspiration, including a luxury auction, music, dancing and an exceptional dinner with fine wine and spirits. Sponsorship opportunities available.

Buy your tickets now!

Sponsored to date by Vertex Pharmaceuticals, Viatris, AbbVie, ReCode Therapeutics, and Heritage Bank.

Support Group for Teens with CF

Wednesday, October 15, 2025, 5:30 pm PT (8:30 pm ET)

This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, social worker at the Stanford CF Center.

Parents must provide consent for their teenagers to attend.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Adults with CF

Monday, October 20, 2025, 5:30 pm PT

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).

Register here for the Support Group for Adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

CF Caregivers Support Groups

Tuesday, October 21, 2025

CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Two groups to choose from:

  • Parents of children with CF: 5:00 pm – 6:00 pm PT
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PT

Register here for the Caregivers Support Group for parents of children with CF.

Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Adults with CF Post-Transplant

Wednesday, October 22, 2025, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

Register here for the Transplant Support Group.

You will only have to register once to attend any meeting.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Those Unable to Use CFTR Modulators

Thursday, October 23, 2025, 5:00 pm PT

About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.

Register here for this Support Group.

You will only have to register once to attend any meeting.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Infinity sign in purple with lines to separate sections

November 2025

Navigating Grief to Growth – Bereavement Support Group

Tuesday, November 4, 2025, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

Register here for the Bereavement Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Adults with a Late CF Diagnosis

Wednesday, November 5, 2025, 5:00 pm – 6:30 pm PT

A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.

Register here for the Late Diagnosis Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Conocimiento y Conexión

Wednesday, November 12, 2025, 5:00 pm PT (8:00 pm ET)

This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF.

The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Adults with CF

Monday, November 17, 2025, 5:30 pm PT

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).

Register here for the Support Group for Adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

CF Caregivers Support Groups

Tuesday, November 18, 2025

CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Two groups to choose from:

  • Parents of children with CF: 5:00 pm – 6:00 pm PT
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PT

Register here for the Caregivers Support Group for parents of children with CF.

Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Teens with CF

Wednesday, November 19, 2025, 5:30 pm PT (8:30 pm ET)

This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, social worker at the Stanford CF Center.

Parents must provide consent for their teenagers to attend.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Adults with CF Post-Transplant

Wednesday, November 26, 2025, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

Register here for the Transplant Support Group.

You will only have to register once to attend any meeting.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Those Unable to Use CFTR Modulators

Thursday, November 27, 2025, 5:00 pm PT

About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.

Register here for this Support Group.

You will only have to register once to attend any meeting.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Infinity sign in purple with lines to separate sections

December 2025

Navigating Grief to Growth – Bereavement Support Group

Tuesday, December 2, 2025, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

Register here for the Bereavement Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Adults with a Late CF Diagnosis

Wednesday, December 3, 2025, 5:00 pm – 6:30 pm PT

A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.

Register here for the Late Diagnosis Support Group.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Conocimiento y Conexión

Wednesday, December 10, 2025, 5:00 pm PT (8:00 pm ET)

This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF.

The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Adults with CF

Monday, December 15, 2025, 5:30 pm PT

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).

Register here for the Support Group for Adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

CF Caregivers Support Groups

Tuesday, December 16, 2025

CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Two groups to choose from:

  • Parents of children with CF: 5:00 pm – 6:00 pm PT
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PT

Register here for the Caregivers Support Group for parents of children with CF.

Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.

Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Teens with CF

Wednesday, December 17, 2025, 5:30 pm PT (8:30 pm ET)

This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, social worker at the Stanford CF Center.

Parents must provide consent for their teenagers to attend.

For more information and to register, send an email to CFRI.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Adults with CF Post-Transplant

Wednesday, December 24, 2025, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

Register here for the Transplant Support Group.

You will only have to register once to attend any meeting.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Support Group for Those Unable to Use CFTR Modulators

Thursday, December 25, 2025, 5:00 pm PT

About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.

Register here for this Support Group.

You will only have to register once to attend any meeting.

CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Genentech, and private donors.

Infinity sign in purple with lines to separate sections

For information or to register for these events, please email cfri@cfri.org or call 650.665.7576.