Cystic Fibrosis Research Institute

Over 30,000 in the USA live with a disease that has no cure Help us find one DONATE > Cystic fibrosis impacts people of every race and ethnicity and newborn screening does not detect many mutations Awareness is key Life with CF is a physical and emotional roller coaster SUPPORT PROGRAMS > CF Quality of Life program offers needed support CFRI seeks to raise CF awareness and to advocate on behalf of our national CF community ADVOCACY PROGRAMS > CF can be isolating: You are not alone in your daily fight COMMUNITY EVENTS > Meet others at CFRI's CF Summer Retreat   CFRI's wellness programs (Yoga, Physical Therapy and Strength Building) support physical and emotional wellbeing CF WELLNESS PROGRAMS> Cystic Fibrosis still has no cure RESEARCH > CF research is the answer Did you know CF is the most common fatal genetic disease in the U.S.? KNOW MORE > And the median age of death is 30 years? CFRI's CF Community Voices podcast series shares CF-related information, resources, insights and perspectives. CF COMMUNITY VOICES PODCASTS > CF & COVID-19 READ MORE > CFRI recommends that individuals with CF and their families and friends utilize extra precautionary measures

ABOUT CYSTIC FIBROSIS RESEARCH INSTITUTE

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Mission

To be a global resource for the cystic fibrosis community while pursuing a cure through research, education, advocacy, and support.

 

CFRI

CFRI is a nonprofit organization that funds innovative CF research and offers education, advocacy and psychosocial support programs to those affected by CF.

Vision Statement

To find a cure for cystic fibrosis while enhancing quality of life for the CF community.

WHAT IS CYSTIC FIBROSIS?

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Cystic fibrosis (CF) is a rare genetic, chronic, progressive disease that affects over 30,000 people in the United States, and over 70,000 people worldwide. While most people associate cystic fibrosis with progressive lung disease, CF impacts the respiratory, digestive, reproductive, and endocrine systems. Once considered a childhood disease, over half of those living with CF in the United States are over the age of 18. While life expectancy for those recently diagnosed has reached the mid-forties, the median age of death remains only thirty years. Progress in research has led to new therapies that can extend and enhance the lives of those with CF, but there is still no cure.

LEARN MORE  

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CFRI Community Newsletter
 
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For the fourth consecutive year, CFRI received 4 stars from Charity Navigator, and is recognized as a top-rated charity by Great Nonprofits

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Charity Navigator - four star charity
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