MANY VOICES ~ ONE VOICE
CFRI’s flagship cystic fibrosis advocacy campaign focuses on educating and engaging those impacted by CF, the general public and lawmakers. We aim to broaden understanding of the challenges faced by the CF community.
Our Cystic Fibrosis Advocacy and Awareness campaigns and events shine a spotlight on the challenges faced by those in the CF community, and provide tools to encourage access to therapies and quality care.
Living with CF presents many challenges, including physical, emotional, and financial. Access barriers to medical care and therapies must be reduced, and funds to find a cure for cystic fibrosis must be raised.
Our cystic fibrosis advocacy and awareness programs aim to:
- Integrate the national CF community and legislative cystic fibrosis advocacy. Clarify community needs, prevent loss of resources and broaden access to vital services.
- Build and strengthen coalitions of national CF agencies and CF community members. Increase awareness of CF, and issues that impact quality of life.
- Educate the CF community, the general public, and lawmakers. Share information about the cystic fibrosis, and the impact of its rare disease status.
- Track national and state legislations important to those with CF and CFRI as an organization. Advocate for increased access to treatments and services, and increased funding for CF research.
- Serve as a trusted resource throughout the nation’s federal and state legislative, executive, and administrative bodies. Focus on on CF education, and implications of rare disease status, to increase access to treatments, co-pays, and cost sharing.
Become an advocate
Generate awareness to help increase access to care and improve quality of life for those with CF.
Advocacy Events
Network with the community and participate in programs to spread awareness.
Diversity and Inclusion
We are committed to creating a culture that is welcoming and inclusive for all.