Cystic Fibrosis and Bone Disease: Who is at risk? The prevalence of bone disease in people with CF is thought to be close to one in three individuals. Poor bone health in CF is likely a result of multiple factors, including m [...]
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By Devin Wakefield - Keep Moving When You Hate Everything Days come when I need to dig deeper to motivate myself. I’m tired, I’m sad, I’m scared. I don’t want to. Whatever is going on in life, sometimes I might need some help [...]
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By Elyse Elconin Goldberg - Many years ago, my Grandmother would say these words to me, “Be Kind to Yourself,” when I would feel overwhelmed with managing my Cystic Fibrosis (CF), family responsibilities and life. There was s [...]
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Being a caregiver to one’s parents is an experience many with cystic fibrosis (CF) never get to face. We are used to being cared for. With all our medications, nebulizer treatments, and hospitalizations growing up—and for som [...]
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Having Cystic Fibrosis means a life of many unpredictable ups and downs. It also means hours of commitment to treatments and a healthy lifestyle. This can be overwhelming, especially when transitioning to young adulthood. My [...]
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April is organ donation awareness month and the need for organs keeps growing every year. Transplant is not something every patient with cystic fibrosis (CF) will face. Though modulators, especially Trikafta, have meant [...]
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My name is Thomas Horal, I'm 31 years old and have been living with cystic fibrosis since my diagnosis at the age of 5. My cancer journey started a year ago with a visit to the emergency room. It was late in the afterno [...]
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Be ready! Get Your CF Emergency Supply List! Created by CFRI's CF Adult Advisory CommitteeEmergency Family Planning Sheet for fire, earthquake, hurricane, and winter storms:https://www.cfri.org/wp-content/uploads/2022/11/Fami [...]
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Cystic Fibrosis is my superpower – is it yours? Lisa Bentley shares how Cystic Fibrosis gave her life purpose. I have been blessed with so many incredible opportunities. I have been a high school math teacher, a professional [...]
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By Anna Payne - Do You Have CF? A Colonoscopy Can Save Your Life Last year, at the age of 34, I was living in a place of hope. I was thriving on Trikafta, working full time, serving as elected Supervisor for Middletown Townsh [...]
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By Elyse Elconin Goldberg - Life with Cystic Fibrosis is an ever-changing journey. Just when you think you have a grasp of all that taking care of yourself entails, another diagnosis gets added to your plate. Welco [...]
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