Keep Moving When You Hate Everything By Devin Wakefield Days come when I need to dig deeper to motivate myself. I’m tired, I’m sad, I’m scared. I don’t want to. Whatever is going on in life, sometimes I might need some help. [...]
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By Elyse Elconin Goldberg Many years ago, my Grandmother would say these words to me, “Be Kind to Yourself,” when I would feel overwhelmed with managing my Cystic Fibrosis (CF), family responsibilities and life. There was so [...]
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Do You Have CF? A Colonoscopy Can Save Your Life By Anna Payne Last year, at the age of 34, I was living in a place of hope. I was thriving on Trikafta, working full time, serving as elected Supervisor for Middletown To [...]
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By Elyse Elconin Goldberg Life with Cystic Fibrosis is an ever-changing journey. Just when you think you have a grasp of all that taking care of yourself entails, another diagnosis gets added to your plate. Welcom [...]
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By Georgia Brown In 2019, researchers from the Milken Institute School of Public Health at George Washington University administered the “Cystic Fibrosis Health Insurance Survey.” While this survey is conducted periodically t [...]
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By Sandy Stevens Policymakers in the United States have increasingly been turning to international reference pricingas a mechanism to lower drug prices. It has been messaged as a silver bullet by both theAdministration and Co [...]
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By Georgia B. I am a woman pushing 50. Yet, I am thrilled to be able to say that. One thing about having Cystic Fibrosis (CF) is that we wear our age as a badge of honor. We often have our answer ready, “Hi I’m Georgia from O [...]
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By Danielle Mandella The coronavirus outbreak is scary. For all of us. It’s a virus that we don’t fully understand, yet. One thing we know for sure is that it’s capable of spreading quickly, and can be very difficult to detec [...]
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