By Anna Payne - Do You Have CF? A Colonoscopy Can Save Your Life Last year, at the age of 34, I was living in a place of hope. I was thriving on Trikafta, working full time, serving as elected Supervisor for Middletown Townsh [...]
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Living with Skin Cancer
By Elyse Elconin Goldberg - Life with Cystic Fibrosis is an ever-changing journey. Just when you think you have a grasp of all that taking care of yourself entails, another diagnosis gets added to your plate. Welco [...]
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Motivation to Exercise with CF
By Devin Wakefield - Keep Moving When You Hate Everything Days come when I need to dig deeper to motivate myself. I’m tired, I’m sad, I’m scared. I don’t want to. Whatever is going on in life, sometimes I might need some help [...]
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Food Insecurity and CF
By Georgia B. - In 2019, researchers from the Milken Institute School of Public Health at George Washington University administered the “Cystic Fibrosis Health Insurance Survey.” While this survey is conducted periodically to [...]
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I Am Canadian. Don’t Follow Our Lead on Drug Pricing.
By Sandy Stevens - Policymakers in the United States have increasingly been turning to international reference pricingas a mechanism to lower drug prices. It has been messaged as a silver bullet by both theAdministration and [...]
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Age as a Badge of Honor
By Georgia B. - I am a woman pushing 50. Yet, I am thrilled to be able to say that. One thing about having Cystic Fibrosis (CF) is that we wear our age as a badge of honor. We often have our answer ready, “Hi I’m Georgia from [...]
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Be Kind to Yourself: Emotionally Nurturing Yourself During These Stressful Times
By Elyse Elconin Goldberg - Many years ago, my Grandmother would say these words to me, “Be Kind to Yourself,” when I would feel overwhelmed with managing my Cystic Fibrosis (CF), family responsibilities and life. There was s [...]
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Coronavirus and Risk Reduction
By Danielle Mandella - The coronavirus outbreak is scary. For all of us. It’s a virus that we don’t fully understand, yet. One thing we know for sure is that it’s capable of spreading quickly, and can be very difficult to det [...]
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