COVID-19 Information & Resources

CFRI recommends that individuals with CF and their families and friends utilize extra precautionary measures, including washing hands frequently, not touching one’s face, disinfecting surfaces and spaces frequently (including desks, doorknobs, cell phones, etc.), avoiding large gatherings, and if possible, staying home. In case of quarantine, seek to have adequate medication on hand. CFRI is closely monitoring the recommendations from national and global health organizations as they relate to the CF community.

 

SUPPORT GROUP FOR COVID-19-RELATED STRESS & ANXIETY

Thursday, September 3 (5:00 pm PDT / 8:00 pm EDT). Moderated by Yelizaveta Sher, MD, psychiatrist at the Adult CF Center at Stanford. CFRI will host an online discussion/support group for members of the CF community. This is an open format via Zoom where people can share their experiences and address the anxiety that COVID-19 is triggering in our community. Registration is free.
To register, email your request to CFRI.

 

COVID-19 PRECAUTIONS

Evidence demonstrates that the spread of this virus can be slowed with decisive and early action. Public health measures such as hand hygiene, respiratory etiquette and social distancing are encouraged for all individuals. This virus can be particularly dangerous for those with CF due to the rapid onset of respiratory complications. CFRI recommends that individuals with CF and their families and friends utilize extra precautionary measures, including washing hands frequently, not touching one’s face, disinfecting surfaces and spaces frequently (including desks, doorknobs, cell phones, etc.), avoiding large gatherings, and if possible, staying home. For those with CF, the use of masks in public is recommended. In case of quarantine, seek to have adequate medication on hand.

Please also review this helpful list of recommendations posted by the Centers for Disease Control and Prevention.

 

VIDEOS ON DEMAND: WEEKLY Q&As WITH RICK MOSS, MD, AND MARCH 17 TOWN HALL WITH DR. MOSS AND YELIZAVETA SHER, MD

Since we held our town hall meeting about CF and COVID-19 in mid-March, Dr. Moss has answered hundreds of questions from the community related to COVID-19 and cystic fibrosis. His Q & A sessions provide insights to the course of the pandemic and its impact on those with CF. All podcasts have an index of questions, so you can find your answers directly.

WATCH NOW: COVID-19 YouTube playlist.

 

ADDITIONAL INFORMATION & RESOURCES     

Centers of Disease Control & Prevention

A helpful list of recommendations 

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World Health Organization (WHO)

Protective measures

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Advocacy 

Protecting the rights of people with CF and other disabilities during the COVID-19 crisis

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Coronavirus Resource Center – Harvard Health

Wealth of information and answers to commonly asked questions 

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CF Resources & Support

Information and support available from various organizations

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U.S. Department of Labor

Coronavirus Resources

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