November 2024
Virtual Support Group for Teens with CF
Wednesday, November 20, 2024, 5:30 pm PT (8:30 pm ET)
This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, and Deborah Menet, LCSW, social workers at the Stanford CF Center.
Parents must provide consent for their teenagers to attend.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.
Post-Transplant Support Group for Adults with CF
Wednesday, November 20, 2024, 5:00 pm PT
This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.
Register here for the Transplant Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.
Support Group for Those Unable to Use CFTR Modulators
Thursday, November 21, 2024, 5:00 pm PT
About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.
Register here for this Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.
December 2024
Navigating Grief to Growth – Bereavement Support Group
Tuesday, December 3, 2024, 5:00 pm – 6:30 pm PT
A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.
Register here for the Bereavement Support Group.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.
Support Group for Adults with a Late CF Diagnosis
Wednesday, December 4, 2024, 5:00 pm – 6:30 pm PT
A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.
Register here for the Late Diagnosis Support Group.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.
Virtual Community Meeting for the Spanish-Speaking CF Community
Wednesday, December 11, 2024, 5:00 pm PT (8:00 pm ET)
This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF.
The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.
Online Support Group for Adults with CF
Monday, December 16, 2024, 5:30 pm PT
CFRI provides a monthly Online Support Group for Adults with CF, 
which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.
The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).
Register here for the Support Group for Adults with CF.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.
CF Caregivers Support Groups
Tuesday, December 17, 2024
CFRI provides a monthly online CF Caregivers Support Group, which is open to 
participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers.
Two groups to choose from:
- Parents of children with CF:
5:00 pm – 6:00 pm PT - Parents/Spouses/Partners of Adults with CF:
6:00 pm – 7:00 pm PT
Register here for the Caregivers Support Group for parents of children with CF.
Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.
Virtual Support Group for Teens with CF
Wednesday, December 18, 2024, 5:30 pm PT (8:30 pm ET)
This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, and Deborah Menet, LCSW, social workers at the Stanford CF Center.
Parents must provide consent for their teenagers to attend.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.
Post-Transplant Support Group for Adults with CF
Wednesday, December 18, 2024, 5:00 pm PT
This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.
Register here for the Transplant Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.
Support Group for Those Unable to Use CFTR Modulators
Thursday, December 19, 2024, 5:00 pm PT
About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.
Register here for this Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Amgen, and private donors.
For information or to register for these events, please email cfri@cfri.org or call 650.665.7576.