February 2025
Virtual Support Group for Teens with CF
Wednesday, February 19, 2025, 5:30 pm PT (8:30 pm ET)
This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, and Deborah Menet, LCSW, social workers at the Stanford CF Center.
Parents must provide consent for their teenagers to attend.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Dance Like A Fool
Friday, February 21, 2025, 5:00 pm PT (8:00 pm ET)
Join CFRI and your CF Community for our fourth annual Dance Like a Fool Dance-a-thon! This 4-hour virtual dance party begins at 5:00 pm PT (8:00 pm ET) Friday, February 21. The event is held in memory of CFRI staff member Danielle Mandella, who created the event in 2022. Register as a solo dancer or gather your friends and family to participate as a team. All donations will benefit CFRI’s CF Wellness Programs.
Post-Transplant Support Group for Adults with CF
Wednesday, February 26, 2025, 5:00 pm PT
This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.
Register here for the Transplant Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Support Group for Those Unable to Use CFTR Modulators
Thursday, February 27, 2025, 5:00 pm PT
About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.
Register here for this Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored to date by Viatris and private donors.
March 2025
Navigating Grief to Growth – Bereavement Support Group
Tuesday, March 4, 2025, 5:00 pm – 6:30 pm PT
A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.
Register here for the Bereavement Support Group.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Support Group for Adults with a Late CF Diagnosis
Wednesday, March 5, 2025, 5:00 pm – 6:30 pm PT
A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.
Register here for the Late Diagnosis Support Group.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Virtual Community Meeting for the Spanish-Speaking CF Community
Wednesday, March 12, 2025, 5:00 pm PT (8:00 pm ET)
This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF.
The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Virtual Winter Retreat for Adults with CF
Friday, March 14 – Sunday, March 16, 2025
Join us for CFRI’s Virtual Winter Retreat. Created to enhance education, coping skills, and social support for adults with CF, the retreat includes presentations by CF experts and special guests, as well as daily exercise activities, arts and crafts, support group sessions, and more. Adults with CF, their family members and friends are invited to join.
Register now!
CF Winter Retreat is sponsored to date by Vertex Pharmaceuticals, AbbVie and private donors.
Online Support Group for Adults with CF
Monday, March 17, 2025, 5:30 pm PT
CFRI provides a monthly Online Support Group for Adults with CF, 
which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.
The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).
Register here for the Support Group for Adults with CF.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.
CFRI’s support groups are sponsored to date by Viatris and private donors.
CF Caregivers Support Groups
Tuesday, March 18, 2025
CFRI provides a monthly online CF Caregivers Support Group, which is open to 
participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers.
Two groups to choose from:
- Parents of children with CF:
5:00 pm – 6:00 pm PT - Parents/Spouses/Partners of Adults with CF:
6:00 pm – 7:00 pm PT
Register here for the Caregivers Support Group for parents of children with CF.
Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford
CFRI’s support groups are sponsored to date by Viatris and private donors.
Virtual Support Group for Teens with CF
Wednesday, March 19, 2025, 5:30 pm PT (8:30 pm ET)
This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, and Deborah Menet, LCSW, social workers at the Stanford CF Center.
Parents must provide consent for their teenagers to attend.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Post-Transplant Support Group for Adults with CF
Wednesday, March 26, 2025, 5:00 pm PT
This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.
Register here for the Transplant Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Support Group for Those Unable to Use CFTR Modulators
Thursday, March 27, 2025, 5:00 pm PT
About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.
Register here for this Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored to date by Viatris and private donors.
April 2025
Navigating Grief to Growth – Bereavement Support Group
Tuesday, April 1, 2025, 5:00 pm – 6:30 pm PT
A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.
Register here for the Bereavement Support Group.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Support Group for Adults with a Late CF Diagnosis
Wednesday, April 2, 2025, 5:00 pm – 6:30 pm PT
A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.
Register here for the Late Diagnosis Support Group.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Virtual Community Meeting for the Spanish-Speaking CF Community
Wednesday, April 9, 2025, 5:00 pm PT (8:00 pm ET)
This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF.
The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored to date by Viatris and private donors.
CF Caregivers Support Groups
Tuesday, April 15, 2025
CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers.
Two groups to choose from:
- Parents of children with CF:
5:00 pm – 6:00 pm PT - Parents/Spouses/Partners of Adults with CF:
6:00 pm – 7:00 pm PT
Register here for the Caregivers Support Group for parents of children with CF.
Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford
CFRI’s support groups are sponsored to date by Viatris and private donors.
Virtual Support Group for Teens with CF
Wednesday, April 16, 2025, 5:30 pm PT (8:30 pm ET)
This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, and Deborah Menet, LCSW, social workers at the Stanford CF Center.
Parents must provide consent for their teenagers to attend.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Online Support Group for Adults with CF
Monday, April 21, 2025, 5:30 pm PT
CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.
The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).
Register here for the Support Group for Adults with CF.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Post-Transplant Support Group for Adults with CF
Wednesday, April 23, 2025, 5:00 pm PT
This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.
Register here for the Transplant Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Support Group for Those Unable to Use CFTR Modulators
Thursday, April 24, 2025, 5:00 pm PT
About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.
Register here for this Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Navigating Grief to Growth – Bereavement Support Group
Tuesday, April 29, 2025, 5:00 pm – 6:30 pm PT (rescheduled from May 6)
A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Olin Dodson, MA, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.
Register here for the Bereavement Support Group.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored to date by Viatris and private donors.
May 2025
Embrace Mothers Retreat
Friday, May 2, to Sunday, May 4, 2025
CFRI’s Embrace Mothers Retreat will take place Friday, May 2 to Sunday, May 4, 2025, at the beautiful Vallombrosa Retreat Center in Menlo Park, California. The retreat offers art, yoga, writing, CF resources, advocacy, support, drumming, and respite time with women who share the CF path. Whether your child with CF is a baby or an adult, you are warmly encouraged to attend.
Register here for the Embrace Mothers Retreat.
Sponsored to date by Vertex Pharmaceuticals and AbbVie.
Support Group for Adults with a Late CF Diagnosis
Wednesday, May 7, 2025, 5:00 pm – 6:30 pm PT
A discussion and support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD, both adults with late CF diagnoses.
Register here for the Late Diagnosis Support Group.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Virtual Community Meeting for the Spanish-Speaking CF Community
Wednesday, May 14, 2025, 5:00 pm PT (8:00 pm ET)
This monthly meeting takes place on the second Wednesday of every month and offers attendees a chance to address the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF.
The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Online Support Group for Adults with CF
Monday, May 19, 2025, 5:30 pm PT
CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.
The group meets on the third Monday of every month, from 5:30 pm to 7:00 pm PT (8:30 pm – 10:00 pm ET).
Register here for the Support Group for Adults with CF.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.
CFRI’s support groups are sponsored to date by Viatris and private donors.
CF Caregivers Support Groups
Tuesday, May 20, 2025
CFRI provides a monthly online CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers.
Two groups to choose from:
- Parents of children with CF:
5:00 pm – 6:00 pm PT - Parents/Spouses/Partners of Adults with CF:
6:00 pm – 7:00 pm PT
Register here for the Caregivers Support Group for parents of children with CF.
Register here for the Caregivers Support Group for parents/spouses/partners of adults with CF.
Please allow 3-4 hours before the meeting to register. If you registered before, you don’t need to do it again.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford
CFRI’s support groups are sponsored to date by Viatris and private donors.
Virtual Support Group for Teens with CF
Wednesday, May 21, 2025, 5:30 pm PT (8:30 pm ET)
This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, and Deborah Menet, LCSW, social workers at the Stanford CF Center.
Parents must provide consent for their teenagers to attend.
For more information and to register, send an email to CFRI.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Support Group for Those Unable to Use CFTR Modulators
Thursday, May 22, 2025, 5:00 pm PT
About 10% of people with CF cannot benefit from current CFTR modulators – due to their genetic mutation, side effects of the treatment, or other reasons. Being part of that group poses unique mental health challenges. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF.
Register here for this Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored to date by Viatris and private donors.
Post-Transplant Support Group for Adults with CF
Wednesday, May 28, 2025, 5:00 pm PT
This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.
Register here for the Transplant Support Group.
You will only have to register once to attend any meeting.
CFRI’s support groups are sponsored to date by Viatris and private donors.
For information or to register for these events, please email cfri@cfri.org or call 650.665.7576.