Events

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June 2022

Post-Transplant Support Group for Adults with CF

Wednesday, June 22, 2022, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

To register, click here. You will only have to register once to attend any meeting.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

Navigating the New COVID Normal Post-Transplant: A Community Conversation

Tuesday, June 28, 2022, 4:00 pm PT

As people come to terms with the “new normal” of COVID-19’s presence for the foreseeable future, there are special considerations for people with CF, especially those post-transplant. Join us on Tuesday, July 28, at 4:00 pm PT, for a live webinar with several transplant recipients who share their tips on how to navigate the new COVID normal.

Register to participate in this community conversation on the “new normal” with four adults with CF who are post-transplant.

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July 2022

Navigating Grief to Growth – Bereavement Support Group

Tuesday, July 5, 2022, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

To participate, please send an email to CFRI to request the registration link. You only need to register once to attend any of the meetings, which will run through December 2021. Please allow 3-4 hours before the meeting to register.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

Virtual Support Group for the Spanish-Speaking CF Community

Wednesday, July 13, 2022, 5:00 pm PT (8:00 pm ET)

This monthly group meets on the second Wednesday of every month and addresses the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF.

The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.

For more information and to register, click here.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

Online Support Group for Adults with CF

Monday, July 18, 2022

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

CF Caregivers Support Groups

Tuesday, July 19, 2022

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

Navigating Grief to Growth – Bereavement Support Group

Tuesday, July 19, 2022, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

To participate, please send an email to CFRI to request the registration link. You only need to register once to attend any of the meetings, which will run through December 2021. Please allow 3-4 hours before the meeting to register.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

Virtual Support Group for Teens with CF

Wednesday, July 20, 2022, 5:30 pm PT (8:30 pm ET)

This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, and Deborah Menet, LCSW, social workers at the Stanford CF Center.

Parents must provide consent for their teenagers to attend.

For more information and to register, click here.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

Post-Transplant Support Group for Adults with CF

Wednesday, July 27, 2022, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

To register, click here. You will only have to register once to attend any meeting.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

CFRI’s 35th National CF Education Conference: Focus on the Future

Friday, July 29 to Sunday, July 31, 2022

CFRI’s Virtual 35th National CF Education Conference, Focus on the Future, will feature renowned speakers addressing phage and gene therapies, mental health, alternative therapies, and much more. The event includes numerous opportunities to connect with your CF community across the country and globe.

Click here for more information and a list of speakers and topics.

Registration is free – click here to register!

Sponsored to date by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and Ionis Pharmaceuticals.

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August 2022

Navigating Grief to Growth – Bereavement Support Group

Tuesday, August 2, 2022, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

To participate, please send an email to CFRI to request the registration link. You only need to register once to attend any of the meetings, which will run through December 2021. Please allow 3-4 hours before the meeting to register.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

Virtual Support Group for the Spanish-Speaking CF Community

Wednesday, August 10, 2022, 5:00 pm PT (8:00 pm ET)

This monthly group meets on the second Wednesday of every month and addresses the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF.

The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.

For more information and to register, click here.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

Virtual CF Summer Retreat

Thursday, August 11, 2022, to Sunday, August 14, 2022

Adults with CF, please join us for CFRI’s Virtual CF Summer Retreat. The Retreat enhances social support for adults with CF and includes educational presentations by CF experts and special guests, daily exercise, arts and crafts, support groups, and more.

Registration is required to receive log-in link and schedule.

Register for CFRI’s CF Summer Retreat.

Sponsored by AbbVie, Vertex Pharmaceuticals and Gilead Sciences.

Online Support Group for Adults with CF

Monday, August 15, 2022, 6:00 pm PT

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PT to 7:30 pm (9:00 pm – 10:30 pm ET).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

CF Caregivers Support Groups

Tuesday, August 16, 2022

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

Navigating Grief to Growth – Bereavement Support Group

Tuesday, August 16, 2022, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

To participate, please send an email to CFRI to request the registration link. You only need to register once to attend any of the meetings, which will run through December 2021. Please allow 3-4 hours before the meeting to register.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

Virtual Support Group for Teens with CF

Wednesday, August 17, 2022, 5:30 pm PT (8:30 pm ET)

This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, and Deborah Menet, LCSW, social workers at the Stanford CF Center.

Parents must provide consent for their teenagers to attend.

For more information and to register, click here.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

Post-Transplant Support Group for Adults with CF

Wednesday, August 24, 2022, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

To register, click here. You will only have to register once to attend any meeting.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

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September 2022

Navigating Grief to Growth – Bereavement Support Group

Tuesday, September 6, 2022, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

To participate, please send an email to CFRI to request the registration link. You only need to register once to attend any of the meetings, which will run through December 2021. Please allow 3-4 hours before the meeting to register.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

Virtual Support Group for the Spanish-Speaking CF Community

Wednesday, September 14, 2022, 5:00 pm PT (8:00 pm ET)

This monthly group meets on the second Wednesday of every month and addresses the unique issues faced by Hispanic/Latinx individuals and families affected by CF. The group is open to adults with CF as well as family members of adults and children with CF.

The group is held in Spanish and facilitated by Marilyn Calderon, LICSW.

For more information and to register, click here.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

Online Support Group for Adults with CF

Monday, September 19, 2022, 6:00 pm PT

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PT to 7:30 pm (9:00 pm – 10:30 pm ET).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

CF Caregivers Support Groups

Tuesday, September 20, 2022

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

Navigating Grief to Growth – Bereavement Support Group

Tuesday, September 20, 2022, 5:00 pm – 6:30 pm PT

A discussion and support group for those who have lost a loved one to CF, whether recently or in the past. Led by Isabel Stenzel Byrnes, LCSW, MPH, a grief counselor who also lives with CF, the group provides a safe place to engage in focused practices to help experience growth in coping with the loss of a loved one. Each meeting has a different topic but there will also be time for open discussion. Adults and mature teens over age 16 are welcome.

To participate, please send an email to CFRI to request the registration link. You only need to register once to attend any of the meetings, which will run through December 2021. Please allow 3-4 hours before the meeting to register.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

Virtual Support Group for Teens with CF

Wednesday, September 21, 2022, 5:30 pm PT (8:30 pm ET)

This monthly group addresses the unique issues faced by teenagers between the ages of 13 and 18 growing up with CF. The peer-to-peer support group is facilitated by Teresa Priestley, MSW, and Deborah Menet, LCSW, social workers at the Stanford CF Center.

Parents must provide consent for their teenagers to attend.

For more information and to register, click here.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

Embrace Mothers Retreat

Friday, September 23, 2022, to Sunday, September 25, 2022

CFRI’s Embrace Mothers Retreat will take place in person from September 23 to September 25, 2022, at the Vallombrosa Retreat Center in Menlo Park, California. The retreat offers art, yoga, writing, CF resources, advocacy, support, and respite time with women who share the CF path. 

Sign up now for the in-person Mothers Retreat

Made possible through grants from AbbVie, Vertex Pharmaceuticals, and Gilead Sciences.

Post-Transplant Support Group for Adults with CF

Wednesday, September 28, 2022, 5:00 pm PT

This support group addresses the unique issues faced by those with CF who have received a double lung transplant and is open to post-transplant CF adults only. The group is facilitated by Sonya Haggett, LCSW, a licensed clinical social worker who has CF and is a double lung transplant recipient.

To register, click here. You will only have to register once to attend any meeting.

Support Groups are sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

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For information or to register for these events, please email cfri@cfri.org or call 650.665.7576.