s
July 2020
Support Group for COVID-19-Related Stress and Anxiety
July 9, 2020, 5:00 pm PST / 8:00 pm EST 
Moderated by Yelizaveta Sher, MD, psychiatrist at the Adult CF Center at Stanford.
CFRI is hosting a bi-weekly online discussion/support group for members of the CF community. This is an open format via Zoom where people can share their experiences and address the anxiety that COVID-19 is triggering in our community.
To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.
Online Support Group for Adults with CF
Monday, July 20, 2020
CFRI provides a monthly Online Support Group for Adults with CF, 
which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.
The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).
To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.
CF Caregivers Support Groups
Tuesday, July 21, 2020
CFRI provides a monthly CF Caregivers Support Group, which is open to 
participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.
Two groups to choose from:
- Parents of children with CF:
5:00 pm – 6:00 pm PST - Parents/Spouses/Partners of Adults with CF:
6:00 pm – 7:00 pm PST
To Attend in Person:
730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)
To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford
Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.
Support Group for COVID-19-Related Stress and Anxiety
July 23, 2020, 5:00 pm PST / 8:00 pm EST
Moderated by Yelizaveta Sher, MD, psychiatrist at the Adult CF Center at Stanford.
CFRI is hosting a bi-weekly online discussion/support group for members of the CF community. This is an open format via Zoom where people can share their experiences and address the anxiety that COVID-19 is triggering in our community.
To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.
Virtual CF Summer Retreat
Thursday, July 23, 2020 – Sunday, July 26, 2020
CFRI’s annual CF Summer Retreat was created to enhance education, positive coping skills, and social support for people who share common experiences with CF. This year, due to the COVID-19 pandemic, the retreat (themed “Roaring Reboot 20/20”) will be a virtual event.
The retreat will be filled with various activities such as daily exercise (yoga, UJAM), arts and crafts, rap group sessions, educational presentations with special guests, and fun group-bonding activities (game night, dance party and more), all of which help promote physical and positive mental health.
Register now! Before the event, we will send you a link to join, a detailed schedule, and a welcome care package.
Adults 18 years and older with cystic fibrosis, their family members, and friends are welcome.
August 2020
CFRI’s 33rd National CF Education 
Conference: Partners in Progress ~ An Exciting Virtual Experience
Saturday, August 1 – Sunday, August 2, 2020
Our 2020 annual conference will be presented in an exciting and engaging virtual format, offering outstanding speakers, support groups, and activities, as well as the opportunity to connect with your CF community from across the country and globe.
Registration is free!
The first 100 registrants will receive a complimentary hardcover copy of “Salt in My Soul” by Mallory Smith!
Confirmed speakers and topics include:
- James Chmiel, MD – Anti-Inflammatory Therapies
- Doug Conrad, MD – CF and Phage Therapy
- Julie Desch, MD – Learning, Laughing and Loving with CF
- Marie Egan, MD – CF Pipeline
- Denis Hadjiliadis, MD – Cancer and CF
- Nicole Irizarry, DPT – Exercise and CF
- Rick Moss, MD – COVID-19 Update
- Virginia O’Hayer, PhD – Acceptance and Committment Therapy (ACT)
- Caroline Okorie, MD – Sleep and CF
- Diane Shader Smith – Salt in My Soul
- Yelizaveta Sher, MD – Psychiatry’s Role in CF Treatment
- Sriram Vaidyanathan, PhD – CF and CRISPR
- CF and the Siblings: Panel Discussion
In addition, 7 CFRI-funded researchers will present their work:
- Ana Georgina Cobián Güemes, PhD
- Martina Gentzsch, PhD
- Lucas Hoffman, MD, PhD
- Elizabeth Kramer, MD, PhD
- Keehoon Lee, PhD
- Kenichi Okuda, MD, PhD
- Forest Rohwer, PhD
Online Support Group for Adults with CF
Monday, August 17, 2020
CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.
The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).
To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.
CF Caregivers Support Groups
Tuesday, August 18, 2020
CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.
Two groups to choose from:
- Parents of children with CF:
5:00 pm – 6:00 pm PST - Parents/Spouses/Partners of Adults with CF:
6:00 pm – 7:00 pm PST
To Attend in Person:
730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)
To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford
Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.
September 2020
CF Caregivers Support Groups
Tuesday, September 15, 2020
CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.
Two groups to choose from:
- Parents of children with CF:
5:00 pm – 6:00 pm PST - Parents/Spouses/Partners of Adults with CF:
6:00 pm – 7:00 pm PST
To Attend in Person:
730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)
To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford
Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.
Online Support Group for Adults with CF
Monday, September 21, 2020
CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.
The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).
To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.
October 2020
Online Support Group for Adults with CF
Monday, October 19, 2020
CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.
The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).
To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.
CF Caregivers Support Groups
Tuesday, October 20, 2020
CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.
Two groups to choose from:
- Parents of children with CF:
5:00 pm – 6:00 pm PST - Parents/Spouses/Partners of Adults with CF:
6:00 pm – 7:00 pm PST
To Attend in Person:
730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)
To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford
Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.
November 2020
Online Support Group for Adults with CF
Monday, November 16, 2020
CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.
The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).
To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.
CF Caregivers Support Groups
Tuesday, November 17, 2020
CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.
Two groups to choose from:
- Parents of children with CF:
5:00 pm – 6:00 pm PST - Parents/Spouses/Partners of Adults with CF:
6:00 pm – 7:00 pm PST
To Attend in Person:
730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)
To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford
Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.
December 2020
CF Caregivers Support Groups
Tuesday, December 15, 2020
CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.
Two groups to choose from:
- Parents of children with CF:
5:00 pm – 6:00 pm PST - Parents/Spouses/Partners of Adults with CF:
6:00 pm – 7:00 pm PST
To Attend in Person:
730 Welch Rd, Palo Alto, CA; 1st Floor Conference Room (both sessions)
To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford
Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.
Online Support Group for Adults with CF
Monday, December 21, 2020
CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.
The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).
To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.
Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.
For information or to register for these events, please email cfri@cfri.org or call 650.665.7576.