Events

 

Infinity sign in purple with lines to separate sections
[/vc_row]

November 2020

[/vc_row]

Review of Lenabasum Phase II Clinical Trial Results

Monday, November 23, 2020, 11:30 am PT (2:30 pm ET)

The role of anti-inflammatories in CF care is vital. Lenabasum, Corbus Pharmaceuticals’ investigational drug that mimics the effects of endocannabinoids in regulating inflammation, has been tracked through the clinical trial process with tremendous optimism. Dr. Chmiel, Principal Investigator of CF-002 (lenabasum), and Division Chief for Pediatric Pulmonology, Allergy and Sleep Medicine at Indiana University School of Medicine, will review the results of the recent Phase IIb trial, and its implications for the CF community. Attendees will have the opportunity to ask questions.

REGISTER NOW!  

Sponsored by Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, Genentech, and Viatris, with additional support from Corbus Pharmaceuticals.

Infinity sign in purple with lines to separate sections
[/vc_row]

December 2020

[/vc_row]

Support Group to Cope with COVID-19 Stress

Thursday, December 3, 2020, 5:00 pm PT

Coronavirus and Risk ReductionEvery other week, CFRI hosts an online discussion/support group for CF community members to talk about COVID-19 related stress and anxiety, moderated by Yelizaveta Sher, MD, psychiatrist at Stanford’s Adult CF Center.

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

 

[/vc_row]

CF Caregivers Support Groups

Tuesday, December 15, 2020

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.

[/vc_row]

Support Group to Cope with COVID-19 Stress

Thursday, December 17, 2020, 5:00 pm PT

Coronavirus and Risk ReductionEvery other week, CFRI hosts an online discussion/support group for CF community members to talk about COVID-19 related stress and anxiety, moderated by Yelizaveta Sher, MD, psychiatrist at Stanford’s Adult CF Center.

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

 

[/vc_row]

Online Support Group for Adults with CF

Monday, December 21, 2020

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Infinity sign in purple with lines to separate sections
[/vc_row]

January 2021

[/vc_row]

Online Support Group for Adults with CF

Monday, January 18, 2021

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

 

[/vc_row]

CF Caregivers Support Groups

Tuesday, January 19, 2021

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.

Infinity sign in purple with lines to separate sections
[/vc_row]

February 2021

[/vc_row]

Online Support Group for Adults with CF

Monday, February 15, 2021

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

 

[/vc_row]

CF Caregivers Support Groups

Tuesday, February 16, 2021

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.

Infinity sign in purple with lines to separate sections
[/vc_row]

March 2021

[/vc_row]

Online Support Group for Adults with CF

Monday, March 15, 2021

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

 

[/vc_row]

CF Caregivers Support Groups

Tuesday, March 16, 2021

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are made possible through grants from Vertex Pharmaceuticals, Chiesi USA, Horizon Therapeutics, Irene Pappas, and a Bequest in Memory of Peter and Kathy Judge.

Infinity sign in purple with lines to separate sections
[/vc_row]

For information or to register for these events, please email cfri@cfri.org or call 650.665.7576.

[/vc_row]

 

[/vc_row]