Events

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March 2021

A Moment of Calm – Yoga with Stacie Reveles

Saturday, March 13, 2021, 9:00 am PT (12:00 noon ET)

Unite through yoga as we commemorate one year of the coronavirus pandemic. Please join CFRI on Saturday, March 13th at 9am PT to focus on breath work and movement to release tension and stress. This virtual class will blend Vinyasa and Hatha Yoga focusing on floor work and traditional standing asanas. All levels are welcome. The class will be taught by Stacie Reveles, CFRI staff member, mother of a daughter with CF, and certified yoga teacher.

Click here to sign up.

Online Support Group for Adults with CF

Monday, March 15, 2021

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

CF Caregivers Support Groups

Tuesday, March 16, 2021

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

Support Group to Cope with COVID-19 Stress

Thursday, March 18, 2021, 5:00 pm PT

Coronavirus and Risk ReductionEvery other week, CFRI hosts an online discussion/support group for CF community members to talk about COVID-19 related stress and anxiety, moderated by Yelizaveta Sher, MD, psychiatrist at Stanford’s Adult CF Center.

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Virtual CF Winter-to-Spring Mini Retreat

Friday, March 19, to Sunday, March 21, 2021

CFRI’s Virtual CF Winter-to-Spring Mini Retreat will take place online from Friday, March 19, to Sunday, March 21, 2021. The retreat will be fully virtual, and will offer educational presentations by CF experts and special guests, as well as daily exercise, arts and crafts, support group sessions, and more.

New participants are encouraged to attend. Registration is required and limited to 100 participants.

For more information and to register, click here. For any questions, please email retreat@cfri.org.

Sponsored to date by Vertex Pharmaceuticals, AbbVie and Gilead Sciences.

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April 2021

Support Group to Cope with COVID-19 Stress

Thursday, April 1, 2021, 5:00 pm PT

Coronavirus and Risk ReductionEvery other week, CFRI hosts an online discussion/support group for CF community members to talk about COVID-19 related stress and anxiety, moderated by Yelizaveta Sher, MD, psychiatrist at Stanford’s Adult CF Center.

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Support Group to Cope with COVID-19 Stress

Thursday, April 15, 2021, 5:00 pm PT

Coronavirus and Risk ReductionEvery other week, CFRI hosts an online discussion/support group for CF community members to talk about COVID-19 related stress and anxiety, moderated by Yelizaveta Sher, MD, psychiatrist at Stanford’s Adult CF Center.

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Online Support Group for Adults with CF

Monday, April 19, 2021

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

CF Caregivers Support Groups

Tuesday, April 20, 2021

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

Support Group to Cope with COVID-19 Stress

Thursday, April 29, 2021, 5:00 pm PT

Coronavirus and Risk ReductionEvery other week, CFRI hosts an online discussion/support group for CF community members to talk about COVID-19 related stress and anxiety, moderated by Yelizaveta Sher, MD, psychiatrist at Stanford’s Adult CF Center.

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

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May 2021

Virtual Embrace Mothers Retreat

Saturday, May 1, 2021, 9:00 am PT – 5:00 pm PT

CFRI’s 7th annual Embrace Mothers Retreat for Mothers of Children and Adults with CF will take place virtually on Saturday, May 1, 2021. Through art workshops, yoga, journaling, CF resources, and respite time, the retreat offers an opportunity for women who share the CF path to connect and rejuvenate.

There will be two shorter preparatory workshops on Saturday, April 17 and Saturday, April 24 (time TBD).

The Retreat is fully booked at this time. Please email Sabine Brants (sbrants@cfri.org) to be placed on the wait list.

Sponsored to date by Vertex Pharmaceuticals, AbbVie, and Gilead Sciences.

Online Support Group for Adults with CF

Monday, May 17, 2021

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

CF Caregivers Support Groups

Tuesday, May 18, 2021

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

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June 2021

CF Caregivers Support Groups

Tuesday, June 15, 2021

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

Online Support Group for Adults with CF

Monday, June 21, 2021

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

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July 2021

Online Support Group for Adults with CF

Monday, July 19, 2021

CFRI provides a monthly Online Support Group for Adults with CF, which is open to participants nationwide. The group is facilitated by a social worker well versed in issues facing adults with CF.

The group meets on the third Monday of every month, from 6:00 pm PST to 7:30 pm (9:00 pm – 10:30 pm EST).

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford.

Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

CF Caregivers Support Groups

Tuesday, July 20, 2021

CFRI provides a monthly CF Caregivers Support Group, which is open to participants nationwide. The groups are facilitated by a social worker well versed in issues facing CF caregivers. Participants are able to participate in person, as well as join anywhere from the country by telephone.

Two groups to choose from:

  • Parents of children with CF:
    5:00 pm – 6:00 pm PST
  • Parents/Spouses/Partners of Adults with CF:
    6:00 pm – 7:00 pm PST

To participate, please send an email to CFRI to request the registration link. Please allow 3-4 hours before the meeting to register.

Facilitated by Meg Dvorak, LCSW, or Kate Yablonsky, LCSW, CF Social Workers at Stanford

Caregivers Support Groups are sponsored by Chiesi USA, Genentech, Ionis, Viatris, Translate Bio, Gilead Sciences, and private donors.

34th National CF Education Conference: Illuminating the CF Journey

Friday, July 30 – Sunday, August 1, 2021

CFRI’s 34th National CF Education Conference, Illuminating the CF Journey, will take place in an engaging virtual format, with renowned speakers addressing phage, mRNA and gene therapies, mental health, exacerbations, and much more. Hear from the author of Breath from Salt, and those featured in the book.

The event includes support groups and activities to connect with your CF community across the country and globe.

Registration is free! The first 75 registrants will receive a complimentary copy of Breath from Salt.

Click here for more information and a list of confirmed speakers. Click here to register now.

Sponsored to date by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and Ionis Pharmaceuticals.

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For information or to register for these events, please email cfri@cfri.org or call 650.665.7576.